New to MS-seeking support

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Re: New to MS-seeking support

Postby jimmylegs » Wed Sep 19, 2012 4:12 pm

ok re the low d3, that's easy, find a high potency vit d3 supplement, and make sure you balance it with calcium, magnesium and zinc. (zinc must also be balanced with copper).

i suspect with the low d3 that zinc could be low also. the possible hypothyroidism points that way also. could be worth looking into.

clarification re the magnesium test - is that a serum result in mg/dL? if so it converts to 0.82 mmol/L. you want to be 0.90 mmol/L at a minimum. which would be more like 2.2. even though it looks like a small increase, it can make a difference.

moving on (these next are not the kind of result i'm usually working with so bear with me re guesswork :S)

re hyperchloremia, can be comorbid w/ diabetes. there are links in research between neurologic disease, hyperchloremia, hypernatremia, and dehydration.

the high BUN, high Creatinine, and highish BUN-Cr ratio - possible link to GI bleeding.. related to H. pylori infection maybe??

[edited out cbc comments - in review they were stupid! lol]
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Re: New to MS-seeking support

Postby greenspark » Fri Sep 21, 2012 7:22 am

Thanks for the replies. I'm taking in everything posted. Jimmylegs, that was a typo on the hct. Supposed to be 39.2, not 3902. The magnesium was 2.0 mg/dL.

On 09/19, my husband had to call an ambulance and I spent a few hours in the ER. I got dizzy when I was walking into my home office, the floor tilted and I found myself on the floor with facial twitching and inability to speak for a while. They did standard CBC and comprehensive metabolic panel and did not find anything out of the ordinary. Also, my left side was weak. I thought possibly stroke or seizure. They did a CT of head but that was just to look for intracranial bleed because I didn't know if I hit my head on the way down. They weren't concerned with what the CT showed. Also an EKG was done that only showed the PVCs, PACs that I already knew I had. I was released with a rx for
Antivert for the dizziness. No answers.

When I was in the hospital, my abdomen (along the sides) went into spasm (rock-hard ropes) but they did not care or even attempt to feel what I was talking about (because that had nothing to do with my fainting, and that's why I was there).

My supportive family (husband and son) have to be getting sick of the fact that my illness is all i can talk about anymore. I feel like I'm driving them away. This has become so all consuming and only someone who has experienced bizarre chronic illness could understand. Maybe I'm crazy and these are all psychosomatic symptoms related to stress??????????? I wonder, though, who would not be stressed if they were the ones whose lives were falling apart. I have never needed validation the way I do at this low point.

I have an appointment scheduled with a new doctor on Tuesday. I don't even know at this point how to approach him about the other symptoms besides the H. pylori (the only thing I can "prove" is wrong with me)--I don't want him to think I'm a crazy person, as I feel everyone else is beginning to think. Maybe I'll only ask about the H. pylori and the muscle spasming and just touch on the fact that there are other symptoms I'm worried about. Such a puzzle, so much time slipping by without a diagnosis, so much more possibly irreversible damage being done to my body, relationships weakened, my confidence in myself shaken and feeling that this world is a cold and lonely place with no one to whom I can turn for help. I pray constantly. Very difficult time.
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Re: New to MS-seeking support

Postby jimmylegs » Fri Sep 21, 2012 7:33 am

a very difficult week! if you like i can find you that abstract that concludes 0.9mmol/L should be considered minimum for magnesium status, and you can take it to the new doc. let me know :)
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Re: New to MS-seeking support

Postby lyndacarol » Fri Sep 21, 2012 5:55 pm

Greenspark – You are not crazy! I seriously doubt that your symptoms result from stress (Stress is used too often as a copout.). As you may recall, my suspicions revolve around insulin. I urge you to investigate hyperinsulinemia (excess insulin) with your new physician. Just as too much or too little glucose (blood sugar) can cause particular symptoms; in fact, excess insulin can cause low blood sugar and its accompanying symptoms. Insulin Shock (a.k.a. excess insulin or hyperinsulinemia) is marked by pallor, weakness, pounding heartbeat, chills or sweating, tingling in the extremities, and even possible drooling. I suspect that your 09/19 ambulance trip to the ER was due to a problem in your Blood Sugar Control System (BSCS), specifically a high insulin level – certainly if it happens again, request TWO tests – a glucose test AND a blood insulin test. It is possible for the glucose level to be normal while the insulin level is high – so BOTH tests should be done.

All the best on Tuesday with your new doctor. Make a list of all your symptoms in these days before your appointment and hand it to him on Tuesday so that you can remember to discuss everything. Give him the whole picture; do not hold anything back. Remember: you are NOT crazy! There is a problem; you and your doctor compose the team needed to solve the puzzle. You have employed the physician to do this work for you. Please keep us informed how it goes.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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