so is this it?

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so is this it?

Postby spokz » Tue Sep 25, 2012 5:23 pm

Hi all,

recently diagnosed, with RRms, 2 relapses in the past three months and on betaferon bi-daily injections.

my question to you if I don't relapse any further will I get better or is this it? will I still continue to have the typical symptoms fatigue, heat sensitivity, slurred speech, muscle weakness and pain?

will i get some normality back or has the damage been done?

29 year old female from Australia :?
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Re: so is this it?

Postby lyndacarol » Tue Sep 25, 2012 5:48 pm

Welcome to ThisIsMS, spokz.

MS is one of the biggest puzzles in medicine – no one knows the cause; there is not one definite progression in the disease – "different strokes for different folks;" no one has the answer for your questions. Personally, I do not believe in "permanent" damage; I think it is always possible to regain normal function and life. All the best to you.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: so is this it?

Postby MandaPanda2888 » Tue Sep 25, 2012 6:55 pm

I would reccomend seeing a holistic doctor. You can find many natural substances that can help with all of those. I am so happy I'm already seeing results a day later. Today was the first day in a long time I had energy! I got so much done! I am very pleased with the results. Bit that is just my opinion. I was on rebif 44mgs and basically decided that I hated it it made me feel WORSE. :( I see all that stuff as poison. I can't understand what could possibly be good about medicine that burns you. This is all IMHO but I REALLY STRONGLY FEEL that ms is caused by poor nutrition. You might want to take a look at what you eat as well. Lately I've gone all organic and slowly have started going gluten free. Best of luck to you.
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Re: so is this it?

Postby spokz » Tue Sep 25, 2012 7:08 pm

thanks diet isnt an issue for me, im already gluten free and try to stick to the clean eating lifestyle which I had done two years pre diagnosis.

other types of therapies might help, I guess I need to try and find out

I just feel so frustrated June this year I was such a go getter gym everyday and all I knew was pushing myself, I had my first attack in the shower I fainted since then had disorientation, slurred speech, vision loss.. just want some normality back and after three months I've seen no improvement, gotten really down and quite frankly scared!

thanks for all your responses
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Re: so is this it?

Postby stillfighting » Tue Sep 25, 2012 7:33 pm

MS is unpredicatable it can have remissions and relapses. Beta will not work right away. It can take a few month to build up in your system. It is not fair to quit any medication right away. If it is still not controlling your relapses after 6-8 months then I would consider maybe one of the other ones.
It is my best advice after all these yrs. Stay with the ABCR's first and then move on. With the ones that tank the immune system last.
Give each one time to work and do not flip flop around any more than you have too. If Beta does not work I would at least try C next. Of course BG12 is due out soon. Read up and study it well. Your new in this and have the time.
Be ready to move to another drug.. don't just drop it.. do not be unmedicated AFTER being medicated. I am now fearful of this rebound effect.
I do not believe it occurs after the ABCand R's but I understand it could.
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Re: so is this it?

Postby PrincessLeeya » Thu Sep 27, 2012 4:09 am

My Neuro said that people with rrms should expect periods of recovery or improvements. He explained it like "attacks" or relapses and once these subside (usually with steroid help) the body can start to mend and you start to see/feel improvements. Rest helps a lot...

When I was 1st diagnosed 90% of my body was affected I some way. It has been almost 10 months and I still continue to feel improvements week by week. I still have damage however I am a lot better than I was. I am on Tysabri and taking my 7th infusion in Oct.

You should expect to see improvements it just takes time. Be kind to yourself and rest lots. xx
Love is all you need.... xx
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Re: so is this it?

Postby Vikingquest » Thu Sep 27, 2012 2:22 pm

You may not feel like it now, but you're actually in a very exciting time in ms. There are loads of new treatments coming out overthe next few years, and despite what some of the more jaded people say on this forum, we are slowly unravelling this disease. It will be cured. Look into the exciting fields of msc stem cells, tcelna and HSCT, with HSCT this disease CAN be stopped in the RRMS stage already. It's a real choice if your ms is aggressive.

Keep a positive outlook, the likelyhood is that there will be a treatment developed in the next 5-10 years which will effectively stop the disease, that's what I believe anyway.
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