Waiting on a diagnosis, have some questions

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Waiting on a diagnosis, have some questions

Postby sbaro » Sat Dec 15, 2012 11:51 am

Hi, my doc is suspecting MS, I am waiting on an MRI, but I am going crazy and I have some questions, if you all wouldn't mind:

I am having episodes of tingling in my left leg, subtle numbness in the left ear, and some vague tingling in my face and sometimes a burning type sensation in my hands. I also get a lot of muscle stiffness just after some mild exercise. Everything except for my leg is quite subtle and so I am wondering if this fits MS. I am not having any overt loss of sensation or muscle weakness. And no real heat intolerance, I just get fatigued right after a hot shower. And no problems with vision besides needing to get a glasses perscription. Besides that I am just fatigued all the time, always have been actually. So my questions are:

Did anybody have just vague sensory symptoms as their first sign?
How long does it take after symptoms start to get a positive MRI?
Did you have trouble getting people to believe you that you are having these symptoms?
What other diagnoses did you get before confirming MS?

I guess thats all I can think of for now. Thanks so much for your input!
sbaro
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Re: Waiting on a diagnosis, have some questions

Postby MarkLavelle » Sat Dec 15, 2012 2:03 pm

I guess you could say my initial symptoms (paresthesia [pins & needles] in my feet) were vague, in that for the first week or so that came & went. But over the course of 2-3 months the paresthesia spread over most of my skin and became 24/7.

It was about a year and a half before I had a diagnosis and the confirmation of a second opinion, but the neuros didn't make any other dx along the way.

I didn't have any trouble getting anyone to believe me, but I initially saw my physiatrist (thinking it was spine-related) and he's really good about listening (and is the one who sent me to a neuro). Describing things as well as possible usually helps...

RRMS dx 3/3/11; Copaxone since 12/1/11
MarkLavelle
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Location: San Francisco Bay area


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