I'm new (my first post!) to this forum. My PCP referred me to a neuro because my face started tingling and I was getting pins and needles sensations throughout my limbs. I'm exhausted all the time, I can't form sentences very well (frequesntly), I get "brain fog" very frequently as well. After she checked my eyes my face went all tingly, mostly on my right side. She noticed I have more feeling on the left side of my face. After that appt my face tingling got worse, 3 days later it lost a lot of feeling (only on my right side). She rec I go to ER for a CT scan, that was negative. I had an MRI of the brain a few days after, that was negative too, so I saw the neuro. He did and EMG and NCV of my limbs, both negative, and an MRI of the cervical spine, negative as well. My eyes don't focus all of the time and sometimes my right eye will hyper focus on 1 object, but nothing else. PCP said I have nystagmus, but the neuro didn't see it.
The burning sensation, pins and needles, and muscle cramps have plateaued on my limbs, but now I have this gosh awful, very concentrated, "lightning bolt" sensation through out my scalp. My face has lost more feeling and now the left side, (only the lower half) is starting to go numb as well as the inside of that cheek. TMI...I'm having issues with my bowels now.
I met with the neuro again today and he referred me to another neuro who specializes in MS. The soonest appt is in May.
I know this isn't in my head, but man, I almost wish something would show up to validate these awful sensations I'm feeling. Has anyone had a negative MRI and gone back a few months later to find a positive one? MS is the best condition that fits the bill with all of these symptoms (that I know about thus far). Any advice or similar stories would be appreciated.