MS and Fibromylalga is their a link

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MS and Fibromylalga is their a link

Postby Jojay » Tue Feb 26, 2013 9:28 pm

Hi everyone, just looking for views in this subject. I have had some-kind of seizures, I'm awaiting to see a neurologist about them in March. First of all I was diagnosed with FM in January. I have been really poorly . For 8 months I have had low energy shortness of breath, wrist hand hand pain, hand weakness arm weakness muscle pain dizziness confusion , air hunger, shower head mouth pain. I suspect Ms. Over a period of 15 years I've been ill on and off. Think the craziest thing was , I someone would be talking to me and I would say something back that made no sense , also I would think I've said something that I probably would not say and ask them , example,, did I just say this to you,,,,, and they would say no. So you see it's crazy. I have had what I thought were panic attacks until one evening I had what looked like an epileptic fit, afterwards in hospital I had extreme upper body pain with a dull heavy head. I came home and a week later had another and was back in again. I've had another since but it was mild. I have been extremely fatigued after the biggi one , I looked like I had had a stroke and could hardly move and breathing was exhausting. X-ray says my lungs are fine. I'm here in the uk, and just reaching out really to MS sufferers because I generally feel that I have symptoms and I'm looking for views on this subject.

I've had symptoms of my leg feeling disconnected and going dead like I need to lift it with my other hand to help. Then both legs feel wobberly. I've missed loads of work and lost one job over this in last two years. Two years ago my ferritin and iron were really low, calcium low but not too bad. I just feel out if wack now but in no pain at all and feel like I'm picking up after my gruelling four months of pain.

I've had really sore painful under arm pain. Painfull hard breasts, neck pain arm and shoulder pain those four subjects all came at once I couldn't stand anything to touch me I had to wear loose clothing and no bra.

Then symptoms of blurred vision unable to see correctly I'm awaiting a appointment with eye doctor in march

Itching on and off this could last for up to an hour, I constantly thought I must have head lice for around two weeks it came and went .

Bladder problems ear pain itchy ears

So many more little symptoms ,,

Do any of you have Fibromyalga or were wrongly diagnosed,, any input would help,, thank guys for reading this x
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Re: MS and Fibromylalga is their a link

Postby Jojay » Tue Feb 26, 2013 9:38 pm

Also I must add this its the weirdest thing, around a year ago I started feeling like I was vibrating yes vibrating like a mobile phone left on vibrate , if I'm sat still enough or laid in bed I can feel it. It's all through my body. I actually remember this happening once before around ten years ago . I thought it was an earth quake or something. It made me jump out of bed so when it started again I realised it was me,,,
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Re: MS and Fibromylalga is their a link

Postby jimmylegs » Wed Feb 27, 2013 5:25 am

hi and welcome, sorry you've been having a rough time.

one common situation that people with ms and fibro share, is imbalanced nutrient status.

for example, magnesium levels. although most people are 'normal' in the statistical sense, still, ms patients are low in serum magnesium compared to healthy controls. vit d3 is another common nutritional issue that ms patients and fibro patients share.

the list goes on. interestingly, many different illnesses share the same nutritional problems on the face of things, but how they manifest in an individual can vary widely.

anyway. if nutrition sounds like a plausible way forward for you, i have tons of info on best food sources, preferred supplement forms and doses, which tests to order, how to evaluate results.
odd sx? no dx? check w/ dietitian
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Re: MS and Fibromylalga is their a link

Postby Jojay » Wed Feb 27, 2013 5:29 pm

Thank you , I will take a look I'm always interested in what may help,,, x
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Re: MS and Fibromylalga is their a link

Postby lyndacarol » Wed Feb 27, 2013 7:36 pm

Welcome to ThisIsMS, Jojay.

Since you mention that you are in the UK (I assume you received the BCG vaccine against tuberculosis as a child), and since I believe that MS symptoms are caused, in large part, by excess insulin, I encourage you to push your GP to order a "fasting blood insulin test."

I am on the mailing list of Dr. Denise Faustman, a Harvard University researcher working on a cure for type I diabetes. She has triggered increased insulin production from trial participants with previously non-producing pancreas. In her fall letter were links giving more information on her work: ... t-diabetes

Here is a Bloomberg article with more details: ... or-tb.html

Dr. Faustman is also doing research on MS, but I do not believe that the BCG vaccine will be helpful against MS, as she believes – because of a friend's experience. My friend grew up in Ireland where she moved around often and attended several schools; a BCG vaccine was required at each new school (the BCG vaccine is required of school-age children in the UK)– she thinks she has received the BCG vaccine four times. She now has MS.

I think the increased insulin triggered by the BCG vaccine, as Dr. Faustman has found it increases insulin secretion, will make MS worse (since I still believe the insulin/MS connection) . This vaccine uses attenuated (weakened), i.e., live bacteria. Is it possible that BCG (bacillus Calmette-Guérin) continues to live in the body and is NOT eliminated by antibodies, OR that the bacterium changed the pancreas into chronically overproducing insulin? I think this BCG vaccine could be responsible for many cases of MS because it increases insulin production.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: "Insulin – Could This Be the Key?"
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