HELP! My Neuro Can't help me diagnose this...

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

HELP! My Neuro Can't help me diagnose this...

Postby mimili » Sun May 05, 2013 1:08 pm

So, I've spoken to my Neurologist about this, and he can't diagnose the issue. Therefore, I've come here for your help

I was on Rebif for about 3 years. After about 1.5 years of taking it, I started experiencing 2-3 day bouts of illness that resembled an intense flu: sweats, extreme fatigue, nausea, vomiting and headaches. These bouts began to increase in frequency. They started occurring every 6 months, then 4....2...

My Neuro recommended I then switch to Betaseron. I'm on that now. I've started experiencing the same bouts of illness. At first I thought maybe I was eating something? I eliminated MSG from my diet. However, I just got sick again last weekend. I have noticed that the day/night before the onset, I've usually had a busier-than-normal day and/or more stress than usual.

Has anyone else experienced this?
Posts: 2
Joined: Sun May 05, 2013 12:54 pm


Re: HELP! My Neuro Can't help me diagnose this...

Postby jimmylegs » Sun May 05, 2013 1:55 pm

hi mimili sorry you're having a bad time :(
i don't take meds so can't offer input on that specifically.. but I do wonder if you have already dealt with the nutrition side of ms (aside from MSG).
are you monitoring that aspect at all? ie optimizing vit d3, vit b12, magnesium, zinc, copper, selenium, fatty acid status etc?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
Volunteer Moderator
Posts: 11764
Joined: Sat Mar 11, 2006 3:00 pm

Re: HELP! My Neuro Can't help me diagnose this...

Postby eric593 » Sun May 05, 2013 7:15 pm

The interferons are known to cause flu-like symptoms as a side effect of the med.

Is that what you are experiencing? Your neuro surely should have known this. More info can be found in your med literature. Betaseron has a nurse call-line, don't they? Would they have any helpful info?
User avatar
Family Elder
Posts: 483
Joined: Sun Feb 17, 2008 3:00 pm

Return to General Discussion


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service