HELP! My Neuro Can't help me diagnose this...

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HELP! My Neuro Can't help me diagnose this...

Postby mimili » Sun May 05, 2013 2:08 pm

So, I've spoken to my Neurologist about this, and he can't diagnose the issue. Therefore, I've come here for your help

I was on Rebif for about 3 years. After about 1.5 years of taking it, I started experiencing 2-3 day bouts of illness that resembled an intense flu: sweats, extreme fatigue, nausea, vomiting and headaches. These bouts began to increase in frequency. They started occurring every 6 months, then 4....2...

My Neuro recommended I then switch to Betaseron. I'm on that now. I've started experiencing the same bouts of illness. At first I thought maybe I was eating something? I eliminated MSG from my diet. However, I just got sick again last weekend. I have noticed that the day/night before the onset, I've usually had a busier-than-normal day and/or more stress than usual.

Has anyone else experienced this?
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Re: HELP! My Neuro Can't help me diagnose this...

Postby jimmylegs » Sun May 05, 2013 2:55 pm

hi mimili sorry you're having a bad time :(
i don't take meds so can't offer input on that specifically.. but I do wonder if you have already dealt with the nutrition side of ms (aside from MSG).
are you monitoring that aspect at all? ie optimizing vit d3, vit b12, magnesium, zinc, copper, selenium, fatty acid status etc?
odd sx? no dx? check w/ dietitian
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Re: HELP! My Neuro Can't help me diagnose this...

Postby eric593 » Sun May 05, 2013 8:15 pm

The interferons are known to cause flu-like symptoms as a side effect of the med.

Is that what you are experiencing? Your neuro surely should have known this. More info can be found in your med literature. Betaseron has a nurse call-line, don't they? Would they have any helpful info?
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