Rica, thank you for your postings, but I have about reached my limit with your broken record approach to recruiting treatment-naive patients into the antibiotic regime with lofty promises and absolutely no realistic assessment or disclaimers that the treatment you refer to is highly experimental. Your recent claim in the introductions thread that people on the referenced website are "without exception better" has simply crossed the line and I refuse to allow this to go on any longer.
I understand your enthusiasm for your chosen treatment, and am thrilled at your, and many others successes with it. I also believe you personally stand nothing to gain by people trying antibiotics, and so you are publicizing your treatment out of your desire to help others-- a motive I applaud and embrace-- it is the reason why we are all here and why I have allowed this blatant self-promotion to go as far as it has.
As with all potentially viable treatments, we encourage exploration of antibiotics as an alternative treatment-- but to now begin to claim that everyone on this particular regimin is *without exception* better, is at the very least setting people up for disappointment, and more frankly, extremely irresponsible in light of the dearth of clinical trial data.
Even the very best of the best treatments do not work for all people (are all people who take aspirin for a headache *without exception* better? Of course not!), This is particularly true regarding a highly experimental treatment whose perceived success is based almost entirely on anecdotal evidence (and as with LDN will continue to be so, as expected, until a proper clinical trial is in place). From all we've learned, MS treatment will most likely be tailored to the individual and/or disease groups, and as such what works for one may not work for another. No one is saying antibiotics will *not* work, but no one should be saying that antibiotics *will always* work either.
We have always advised that it is important for each and every MS patient to explore *all* avenues of treament, experimental and "approved." You must realize that, particularly when coupled with this outlandish claim of 100% improvement, you are clearly abusing that privilege.
If you disagree with that assertion, simply imagine if every poster followed practically every member's introductory postings with a referral to their treatment of choice-- what good would that cacaphony do?
Everyone here knows where to find information on antibiotics, both here and elsewhere as I've permitted you to post what must be dozens, if not hundreds of links to your site. In fact, you well know that we sponsored the development of the antibiotic discussion in the first place, and the current story on the front page loosely supports the environmental cause for at least some forms of MS. But yet you still unfailingly paste-- in boilerplate, copy and paste, generic fashion-- the link to the homepage of your website into practically all of your postings, in a methodical manner that I as a webmaster clearly recognize as trying to raise the search engine ranking of the same... again, I don't question the purity of your motives, but you must well recognize and admit to your own egregious behavior.
Please immediately desist from posting links to the website in question, unless you have some specific content not on the homepage that is relevant to a discussion being had here (basically the rules everyone else follows for posting links). Otherwise, I will have to ask you to leave since it seems to me (evidenced by your half-hearted posts that serve little purpose besides mentioning the URL of the external site wrapped in a too-good-to-be-true promise of better health)--you no longer seem interested in contributing here asides from recruiting members to another site. Again, there is no lack of links to your site here as it is, which I'm willing to let stand if you alter your behavior moving forward.
There are many, many more people reading this forums than posting, and I feel a personal responsibility to prevent the inadvertent conversion of this site into a feeder for one particular regimin that even you must admit is *entirely unproven.* When we find the (a) cure, we'll be happy to do just that. As yet, we do not believe that is the case.
Thanks for understanding, as I know you will,
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