LOMS>late onset MS

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LOMS>late onset MS

Postby j3apps44 » Wed Feb 26, 2014 8:53 am

Have any of you heard of this or read about it? http://www.unitedspinal.org/msscene/200 ... -onset-ms/ Based on what I've read, many who are diagnosed have Primary-Progressive MS. Not good, right? If you've been diagnosed with LOMS, how was diagnosis made? What were your symptoms? How has it been going for you? Have you been diagnosed with PP MS? Thanks.
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Re: LOMS>late onset MS

Postby centenarian100 » Wed Feb 26, 2014 3:11 pm

My husband's very first symptom was not able keep up with me on walks which insidiously worsened. He has been diagnosed with PPMS. He was diagnosed the usual way-history, exam, MRIs, spinal tap.
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Re: LOMS>late onset MS

Postby victoriagrace1 » Thu Feb 27, 2014 6:17 am

Hi, I was diagnosed when I was 51 with RMS, I first noticed my right leg trailing and had a MRI which diagnosed RMS.
I wish your husband all the best
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Re: LOMS>late onset MS

Postby Shayk » Fri Feb 28, 2014 8:34 am


I was diagnosed with RRMS over 10 years ago at the age of 57. I had difficulty walking (ataxic and slow gait) and burning and numbness of the feet and legs. Alpha lipoic acid took care of the burning and numbness.

I'd had difficulty walking 3 years earlier (age 54) and after numerous work ups by various specialists there was no diagnosis--except it must be anxiety. :-x Similar work up at age 57 and I asked if MS had been ruled out....no, so neuro ordered an MRI and bingo, more lesions than anyone could count. Diagnosis confirmed at Johns Hopkins.

I think I'm doing reasonably well. No gait issues for many years and can get up to 3 mph on the treadmill without holding on in 15 seconds. :-D My symptoms at this point are fatigue, heat sensitivity and cognitive "brain fog". I am still diagnosed as RRMS; although I haven't had any relapses.

Hope it all turns out well for you...wishing you the best.

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