Copaxone for 10+ years?

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Copaxone for 10+ years?

Postby andya » Sat Apr 05, 2014 7:06 pm

Looking for those that have taken Copaxone for 10+ years and am interested in side effects that you have experienced. I was diagnosed in 1999 and have been on Copaxone since then (minus being off to get pg and have 2 kiddos). I have been experiencing bone pain for about past 3 years and am trying to determine if this could be a side effect of the Copaxone that started after all this time.

Thank you,
Andrea
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Re: Copaxone for 10+ years?

Postby want2bike » Sun Apr 06, 2014 6:30 am

Here is a site which shows what side effects people have when taking Copaxone.

http://www.askapatient.com/viewrating.a ... e=COPAXONE
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Re: Copaxone for 10+ years?

Postby Kronk » Sun Apr 06, 2014 8:18 am

[quote="andya" I was diagnosed in 1999 and have been on Copaxone since then[/quote]

Hi Andrea, incredible that you have been on Copaxone that long how have you found it? I am about 18months in and am very excited about the long term trials that show good efficacy but always skeptical of manufacturers claims.

As to the bone pain I have read many articles stating that pwMS are more susceptible osteopenia problems as we age. This is possibly due to the process of bone loss and replacement, as we have issues with cell maintenance it would make sense that we would suffer from the lack of replacement earlier than healthy people. Not this this provides much comfort, but I would look into supplementing the bone replacement process. If you aren't already on Vit D i would recommend it as that is one of the areas that MD's suspect for increased bone loss in MS patients deficient in Vit D. The other important factor is exercise, as the last link shows bone loss is directly related to the level of activity in MS patients... although running after 2 kids is typically plenty of exercise ensure you are incorporating some heavy weight lifting activities.

http://longevity.about.com/od/arthritis ... a-mngt.htm

http://www.neurology.org/content/44/9/1687.short

http://msj.sagepub.com/content/10/2/170.short

http://onlinelibrary.wiley.com/doi/10.1 ... ated=false
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Re: Copaxone for 10+ years?

Postby daverestonvirginia » Mon Apr 07, 2014 6:20 am

I have been on Copaxone almost 10 years, other than it is getting harder to find places to inject the med I have had no side effects.
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Re: Copaxone for 10+ years?

Postby Kate_PghPA » Thu Apr 10, 2014 7:11 pm

MS diagnosed in 2000, after 'failing' avonex & rebif I've been on Copazone for c.11 yrs. no side effects EXcept I get
Pain at injection site ONLY in upper arms...so I don't inject there... God bless us all !! k.
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
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Re: Copaxone for 10+ years?

Postby Loriyas » Fri Apr 11, 2014 2:58 pm

Been on Copaxone for 11 years. My biggest side effect complaint is lipoatrophy. It is pretty back on my thighs.
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Re: Copaxone for 10+ years?

Postby David1949 » Sun Apr 13, 2014 7:18 pm

These are common side effects according to this site http://www.rxlist.com/copaxone-side-eff ... center.htm


Copaxone (glatiramer acetate) is used to treat multiple sclerosis (MS) and to prevent relapse of MS. This medication will not cure MS, but it can make relapses occur less often. Copaxone is a combination of four amino acids (proteins). Common side effects include injection site reactions (e.g., pain, redness, soreness, and swelling). Nausea, chills, joint aches, neck pain, or headache may also occur. Immediately after injection, you may experience flushing, chest pain, fast heartbeat, anxiety, shortness of breath, or itching. These symptoms usually disappear quickly and usually do not require treatment.
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