ye, ye .... badly flawed....
you can smell there is change in the air.
neurologists become critical to DMTs.
will be interesting to see what this ACTRIMS/ECTRIMS conference will deliver: http://www.msboston2014.org/index.php/s ... ic-program
re: the last points
12.Society and MS: roles of the expert patient, social media, and health policy
8.Critically examine how the expert patient, news media, social media, and health policy affect the relationships between patients with MS, health care providers, and researchers.
I do not know how the agenda came together.
but I do see a much stronger reference to experts patients than ever before, the role of social media etc.
I think the professional world starts to take more serious this 'Citizen Science'.
it gets particularly interesting when health policy is mentioned.
I have always thought that health policy was the prerogative of the government and perhaps a bit the insurers.
but I haven't heard anything about a major swing in Europe or the US as regards MS related health policies.
so what is this? is this ECTRIMS/ACTRIMS being advocate and judge at the same time to make long overdue new policies?
in any event, I am quite happy with this joint US/Europe initiative.
in the US, when things show to be wrong, you are much better than we are in Europe in making a fast turn-around.
I hope this meeting will become a landmark event and indeed profoundly change the paradigm.
and that the US will take Europe along in its slipstream.