New treatment forum - Ocrevus

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New treatment forum - Ocrevus

Postby NHE » Mon Jan 02, 2017 1:50 am

We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.

ocrevus-ocrelizumab-f58/
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Re: New treatment forum - Ocrevus

Postby Tmcbroom » Wed Feb 21, 2018 3:43 am

I am just coming off Tysabri, I will be starting Ocrevus very soon. I am very afraid, of the side effects and will this even work. I was diagnosed 5 years ago, I have been on copaxon , Avonex and Tysabri. Tysabri was supposed to be the 1 , the 1 that will make the difference.
I really liked it, but I had 2 relapse in less than a year. This last 1 left permit damage (speech, memory the ability to form words ). Please tell me who is on it and what do you think???
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Re: New treatment forum - Ocrevus

Postby jimmylegs » Wed Feb 21, 2018 7:47 am

hi TmcB, i'm afraid i can't comment re the drug treatment side of things but am curious what you may have tried along the health promotion track?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: New treatment forum - Ocrevus

Postby Kheuer » Wed Oct 31, 2018 3:43 am

Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus started May 2018. Male age 46 at diagnosis.

Zero side effects except for horrible reaction to tetanus shot. After research, B cells ferry tetanus toxoid to T cells, Ocrevus killed B cells, leaving toxoid circulating. Fever for 3 days, and muscle cramps, joint pain. Roche and Genentech have been informed.

Every single set of data shows ocrevus is basically a wonder drug. Not only does it stop progression after a certain length of treatment, new data shows recovery of function in some.

I had to use my arms to lift my legs out of the car, after the first infusion of ocrevus, I can now mow my .62 acre yard with a walk behind.

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