VERY URGENT - NHS postcode Lotteries

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VERY URGENT - NHS postcode Lotteries

Postby robinredbreast » Tue Sep 12, 2006 9:22 pm

Please can anyone help with the request below?

If so please can you ring the MSRC Office as soon as possible on 01206 505444 or 0800 783 0518 so that we can put you in touch with journalist, as as you will see time is of the essence. squiffs

I'm a disabled freelance journalist. I sometimes write for the BBC's Ouch website, but at the moment my day job is as a producer of podcasts for Channel 4 Radio. The podcasts are part of C4's venture into the radio market, short audio-only programmes available online after key TV programmes. The ones I'm making are all on contemporary current affairs
issues.

The particular reason I'm contacting you is because I'm producing something to coincide with an upcoming C4 programme looking at NHS postcode lotteries access to treatments and so forth.

These podcasts tend to be what we call 'single voice' affairs - I take a microphone to an individual and record them talking in their own words, about their own experiences. I'm very interested in this one being from the point of view of someone who is fighting for or has fought for a particular sort of treatment.

I know Beta Interferon continutes to be an issue for people who have MS, and I wondered if MSRC might be willing to help me get in touch with people who have experience of fighting for beta interferon who might be interested in taking part in a podcast.

The catch is that my schedule is - as always - very tight, and in an ideal world I am looking for someone who is able to take part in recording on Thursday or Friday this week.
Laughter for MS - http://www.shof.msrcsites.co.uk/
Life's journey is not to arrive at the grave safely in a well preserved
body, but rather to skid in sideways, totally worn out, shouting "holy
shit...what a ride
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Postby JFH » Wed Sep 13, 2006 1:38 am

Is there still a postcode lottery for BInt in England and Wales. The NICE guidelines are pretty clear in my view. Two relapses in past year, definitive diagnosis of RRMS (or SPMS in case of Betaferon/Beatseron) and you're eligible for the risk-sharing programme.
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Postby SarahLonglands » Wed Sep 13, 2006 6:24 am

That's what I thought, except that with SPMS you often have to fight with your neuro.......Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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