I'm probably not the only one here who finds your post incredibly insulting.
I, for one, lump you in with all the other whackjobs who believe they have the 'answer'. Perhaps the reason you didn't get all of the reads and responses that you craved are that others share my opinion of you and your 'charity'
I’m sorry you feel that way Robin. I emphasize that my comments were chastising those who claim there are no altruistic endeavours in the research realm and that all current research has a profit motive, not because they don’t agree with me.
I concur with some of those cynical sentiments yet I consider our pursuit to be free of those motives. So why not recognize DIRECT-MS for that virtue? There’s nothing like a doff of the hat for the small guy.
Irrespective of what you feel I crave, our pursuit continues in relative anonymity.
Nick, I share your frustration with inattention to what works, but remember this please---this site is peopled by those who already have MS or their loved ones already have MS. It's a done deal. Like you, I find myself in a minority position, though not the same one. In fact, as you read the posts, you realize that most of the folks on this site have leanings on causes and treatments or are in a particular "camp" with regard to causes and treatments. Opinions, opinions, opinions...everybody has one. Airing our opinions and sharing information is what this site is about, so chill out. Don't hammer people who don't see things the way you do. If it's any comfort to you, I would venture to say that most of the users here know about the MS-Direct Best Bet Diet and have taken from it what they will, as have I as well.
Cypriane~caregiver and advocate for husband with SPMS (and improving)
Hi Cypriane. Indeed opinions are like A-holes, everybody has one. As I wrote above, I’m not criticizing those who don’t agree with my opinions. I do however take issue with the lament that there are no pursuits looking for a solution to MS that doesn’t involve a profit motive. There were a number of comments decrying the absence of independent, altruistic research initiatives yet I recently posted, with little acknowledgment, such an undertaking.
I alluded to prevention in my earlier post. I still feel that way and those same means of prevention can be used to ameliorate on-going MS. For those that haven’t bothered to read the research initiatives of our trial in Scotland, it involves people with diagnosed MS. The whole pursuit of that trial is to determine what affect a dietary regimen can have on active MS.
Anecdotally, after revising my diet accordingly I have arrested my progressive state of MS and improved some too yet I am still plagued with nerve damage and its consequent impairment. I feel this limited positive effect on me is due to the timing of my intervention. I was in very poor condition with longtime active disease activity when I arrested my disease progress. Consequently I had neurological symptoms arising from both nerve damage and inflammation. I attribute my improvements to the subsidence of inflammation.
induced remission with diet revision and then enjoyed the benefit of his body repairing itself, from what was most likely nerve inflammation rather than nerve damage, to full recovery despite his one time wheelchair status.
So what does one term the status of myself and Roger? Are we cured? I say I can control my disease progress or lack thereof, anxiously await some kind of stem cell implant to give me back full mobility and in the meantime use a Segway to complement my limping. As for Roger, I say he had a full recovery yet both he and I are still susceptible to the disease should we revert to our former causal diets (Roger died at a ripe old age a short time ago).
The same can be said of Matt Embry. He interceded early enough in his disease progress and all of his MS symptoms disappeared within 6 months. Most assuredly his youth contributed to his healing in the absence of causal food proteins. He has existed in excellent health for the last ten years but he devotedly adheres to his dietary regimen because he is still predisposed.
These scenarios lend new emphasis to the adage about everything in life being timing.
Hence the therapy I and many others employ can be used not only for disease prevention in susceptible individuals but also for intervention in people with active MS. The extent of inflammation vs nerve damage will largely govern a person’s degree of recovery to such a pursuit. Hopefully our trial results will also encounter similar results in the study group.
I would like to emphasize the use of adequate vitamin D supplementation. It is relevant to this discussion not only for preventative sake but for active therapy as well. The very essence of how this vitamin interrupts the disease process
so that it never becomes active is still applicable for those who are diagnosed.
One, the offspring of such individuals will benefit immensely of its benefit to ensure prevention and two, the limited data that existshere
indicates it can have a positive benefit on active disease progress.