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PostPosted: Wed Jan 14, 2004 7:00 am 
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Joined: Fri Jan 09, 2004 4:00 pm
Posts: 80
Location: Western PA
Your welcome about the fatigue meds. I hope you find one that works for you.

As you can see from Niko's post what worked for me didn't for her......what didn't work for me did for her!!!

Good Luck to you............Kim


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 Post subject: What 1 Symptom...?
PostPosted: Wed Jan 14, 2004 3:13 pm 
I've got brainfog, and fatigue which is helped by Amantadine. But if I could walk, not wall walk, not lurch, no cane, no falls - I would be so happy!


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 Post subject:
PostPosted: Fri Jan 23, 2004 8:37 am 
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Joined: Thu Jan 22, 2004 4:00 pm
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Location: France
For me, it has to be the urinary trouble - frequency and URGENCY! Can't go anywhere unless I know where the toilets are, if there are any. Not always sure here in France...

Of course, for the past 2 weeks or so, I've had this funny feeling in my right arm and leg which lasts for a few seconds at a time. Like I can't control them, and I have a hard time walking, writing or typing for those few seconds. Starting to interphere with my work, so I may have to see the neuro. Sigh! :(

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Brenda H.
Only one thing has to change for us to know happiness in our lives: where we focus our attention. -Greg Anderson


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 Post subject: FATIGUE
PostPosted: Fri Jan 23, 2004 1:26 pm 
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Joined: Thu Jan 22, 2004 4:00 pm
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Location: Northern Arizona
Even though my hands hurt me all the time, I can deal with that. I can't stand the fatigue!!!
My second would be the pain in my hands.
My third (and this may be first come next summer!) is the inability to tolerate heat! I live in Arizona, for crying out loud! I cannot stand to be hot, or usually even warm.
Growl, :?
Hugs
Auntie Jane

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 Post subject:
PostPosted: Fri Jan 23, 2004 2:31 pm 
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Joined: Thu Dec 11, 2003 4:00 pm
Posts: 52
Location: Staten Island, NY
When I go out in COLD weather, my neck and head can't handle it, they spasm and tighten and I'm in pain until I either warm up a bit or can get them to relax.

I had this last winter for the first time and was hoping it wouldn't happen any more... but this winter, same thing.


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 Post subject:
PostPosted: Mon Feb 02, 2004 10:13 am 
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Joined: Wed Jan 28, 2004 4:00 pm
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Location: Michigan
I would have to say fatigue and this new pain in my thigh it just started, a pain in my upper right thigh it shots up my thigh.

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 Post subject:
PostPosted: Fri Feb 06, 2004 4:21 am 
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Joined: Thu Feb 05, 2004 4:00 pm
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Location: Sheffield UK
For me it's the loss of function in my left hand. How can a poor boy play rock'n roll guitar without the use of the fret board. Now if this disease takes my right I won'tbe able to write my stories, then all creativity will be lost. Is there a worse fate????


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 Post subject:
PostPosted: Fri Feb 06, 2004 4:32 am 
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Joined: Thu Jan 29, 2004 4:00 pm
Posts: 85
Location: Devon - England
Hi Aikika. :D

I sympathise with your problems - I can't come up with a solution for your guitar playing, but the creative writing should still be achievable, even if you have to record it to tape for someone else to key in. Let's all hope that the brain keeps active :?

All the best,
Chris P

PS. What's happened to the spell-check guys :?:


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