For once I have to agree with you completely. Of course MS is a ternminal disease, not for everyone, but for many. They are the ones who don't post here, because they can't. They have fallen off the radar and have been forgotten about. This was an aditional post I made at CPn Help:
I can be as politically incorrect as the person in Cypriane's reply about certain things, multiple sclerosis being maybe even higher than the wearing of the niqab, so here are some words taken from the British MS society website. They used to use the rather contradictory words: in one place they would say that a person with MS could expect to live a near normal lifespan, in another place that after diagnosis you could expect to live at least 20 years. They have slightly modified this now and the words in bold are decorated by me:***MS is not a terminal illness***.
However, it is a lifelong condition, so once you have it, you have it for life. Like everyone else, you are most likely to die from natural causes and can expect to have a relatively normal life span.
MS is complex and it is impossible to predict how you may be affected over time. As a result, it is as difficult to determine the life expectancy of someone with MS as it is for someone who does not have MS.
Research suggests that: the overall life expectancy of people with MS is only slightly lower than that of the general population.
I don't think I need to comment further on this, you probably know what I am thinking, but the next is an absolute gem:
Although there is (¿¿¿)no clear explanation(???),
there is some evidence to show that the rate of suicide is slightly higher in people with MS than the general population. This could be because depression is a common symptom, which often goes undetected and untreated.
Both of you, I needed to do this last night and I slept better because of it, in fact I didn't wake up until nearly eight o'clock, which is unheard of. Yesterday I was trying to paint the narrow window frames of the last painting I had to leave unfinished when my arm finally gave out, based on this drawing:http://www.avenues-of-sight.com/sarahlonglands-ucprints5.html
I couldn't, because I couldn't hold the brush steady for the narrow spaces. Today I can do it with no trouble because I have cleared my mind. I'll post it when I have finished it........Sarah
Then today, in reply to someone else, I wrote this:
Wiggy, that is so sad. Now its me who is having trouble both to read it and to know what to say. I keep hearing from people that they had a friend with MS who died at whatever age, always far younger than the "relatively normal life span." To me, it doesn't really matter what the actual cause of death is, whether pneumonia or a septicaemia caused by a UTI infection or by suicide. If that person didn't have MS they wouldn't have died at that age, so it is a terminal disease. Now it needn't be, but certain neurologists are still denying people the chance to use these relatively safe antibioticsi because they thoroughly believe that MS is an autoimmune disease, so once you get to a certain stage, you just have to learn to live with it, and "allow the disease to take its course" as my neurologist told me. Well, now nobody has to learn to live with it, even if the most they can do is stop the progression, that is better than getting worse and worse. I hope that in the not too distant future, the first line of treatment when diagnosed with MS is to be prescribed these antibiotics. Also for any other disease in which CPn is implicated. It won't cost much and will likely save all the various countries' health systems a hell of a lot in future care, never mind the people involved and their suffering...........Sarah
Additionally, I would say that David, during his hospital duties, had to see a lady earlier last week who the registrar described as having "end stage" MS. She had aquired a septicaemia due to a UTI caused by permanent cathterisation. She was younger than me. She survived this time, but can do nothing for herself.