I spent part of my childhood in Winnipeg. Great city but the economy has definitely made health care delivery a challenge (mother worked in emerg at miseracordia). I'm sorry you're alone and trying to deal with this. Here are my few cents (please anyone stomp on me here if I have been remiss in anything)
(a) Ignore osmond and similar crap sites. If you need a reliable source of information, both on traditional and "alternative" treatment approahces, its here. THISISMS is the first place you'll see breaking news on research results. Its the only place (in my mind) you'll see all opinions respectfully but carefully assessed and supported or refuted.
(b) Ensure you are giving your body its best chance to recover and strengthen. A good supplement list is at http://www.direct-ms.org/supplements.html
for starter. There have also been excellent posts on supplements on this site, although it unfortunately takes a while to comb through them all (we have no way of collaborating). Personally, I'd start with direct-ms right now (right now
), and then build on it. You'll feel better, and you'll feel you're doing something positive
(c) Read about prednisone/steroids. Question your doctor about why you are taking them. I'm rather negative on their use, they appear to offer only short term symptomatic relief, with no long term benefit to counter their risks and side effects. My sister (wtih MS) has severe osteoporosis which she now attributes to her heavy doses of both. Her ankle shattered like a wine glass a couple of months ago, its unclear to me that it will ever be right again.
(d) Read about CRABS and prepare some tough questions for your doctor. Why betaseron? Has it proven more effective than other crabs in short term reduction of relapse rate? More effective in long term EDSS progression? Does it have a better safety profile? Make sure your doctor didn't start prescribing the drug ten years ago and just never had time to read any of the new research. Why not copaxone?
(e) Get your computer problem fixed. Try logging into this site and posting from the repair shop and show them the problem. Or advertise on Craigslist or Winnipeg Free Press (see, I'm throwing in all sorts of local references) for a techy to come over and resolve. You really need to feel like you're informed and involved, and being online is essential to do that.