How do you cope with MS when dealing with tough periods?

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Postby Grumpster » Fri Apr 06, 2007 12:44 pm

I just wanted to reply quickly. My comments were not to say that hiding from MS and the symptoms with your "head in the sand" was a good idea. I was only stating that I do not always detail all the symptoms I have because I do not feel that it is entirely necessary.

I have had long discussions with my wife about disability, future prognosis and all the like and that is really something I believe is really necessary. I regularly tell her the major issues I am having, I just do not want to constantly complain about my symptoms to her.

I appreciate that many of you are 110% out in the open with your mate about everything MS deals you and that is commendable. Maybe I should be more forthcoming. I don't know.

Anyways, Happy Easter and best to all.
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Postby gwa » Fri Apr 06, 2007 6:31 pm

grumpster,

Describing or complaining about my symptoms is something that I do not do with anyone, especially my husband. So, I agree with your not wanting to focus on your troubles.

It is hard enough to live with someone that is sick for years on end and watch that person deteriorate before ones's eyes without listening to a daily stream of symptom complaints that no one can do anything about.

I would not want to listen to every ache and pain of my husbands and will grant him the relief of not listening to me either.

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Postby beyondms » Sat Apr 07, 2007 2:01 pm

TwistedHelix wrote:I think you've been the victim of "constructive dismissal" where your employers tried to make life hell so you'd quit and then when that didn't work, just found an excuse. It's never happened to me but I've seen it happen to others, and it's not pretty, but as you say it's difficult and expensive to prove. We have anti-discrimination employment laws here, too, but I imagine they're pretty easy to get around.


Dom,

It's easy to feel like a "victim" when you get dismissed for no apparent reason. I received stellar performance reviews but still got canned. I still do not understand why. Was it my MS? I am sure it had something to do with it because I saw their attitudes change somewhat when they found out. But my attitude wasn't always cheerful, especially on tough days. I have to take some responsibility in what happened. Nonetheless, I still feel that they did not give me any clear warnings or try to discuss my attitude - if that was the problem - with me before taking these measures.

Living with MS isn't easy, especially if co-workers do not support you. Disclosure is not necessary but it can be worthwhile if your employer supports you.

I try to focus on my qualifications but there are some very tough moments where my self-confidence falls to zero. Searching for work in a highly competitive field of finance isn't easy. I pray for the best.

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