This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 6:41 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 4 posts ] 
Author Message
 Post subject: Histamine 2
PostPosted: Fri May 25, 2007 8:15 am 
Offline
Family Elder
User avatar

Joined: Sun Oct 09, 2005 3:00 pm
Posts: 428
Location: Missouri, USA
Good article I just found. I am sure none of you will be surprised.... But still, a good article.

Brock


http://www.emediawire.com/releases/2007/5/emw528759.htm


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 25, 2007 8:44 am 
Offline
Family Elder
User avatar

Joined: Thu Dec 01, 2005 4:00 pm
Posts: 846
Harry Z's wife is on this and he posts about it occasionally. I don't know if there are others that have tried it.

It is not cheap as I remember.

gwa


Top
 Profile  
 
 Post subject:
PostPosted: Fri May 25, 2007 4:40 pm 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2684
Location: Sydney, Australia
I have tried Prokarin, and it didnt do much for me personally. However, other swear by it. I think I read somewhere once that it has a tendency to help those that are heat sensitive, more.

It is pretty expensive, but if it works for you, its pretty cheap.

You can read more at links off this web site: http://www.healthwatcher.net/Quackerywatch/MS/ Even though its a "Quakery watch" web site, it has some good links to both sides of the argument.


Top
 Profile  
 
 Post subject: Re: Histamine 2
PostPosted: Fri May 25, 2007 9:28 pm 
Offline
Family Elder
User avatar

Joined: Tue May 25, 2004 3:00 pm
Posts: 2109
Location: London, ON, Canada
Hi Brock,

As Gwa stated, my wife has been on Prokarin for almost 7 years now. It has reduced several of her MS symptoms and I'd hate to think where she would be today if she wasn't using this drug. It's too bad that Prokarin wasn't around some 5 years before she started it in June of 2000. By that time Marg had been diagnosed with MS for almost 30 years and we know she had suffered axonal damage. After she started on the Prokarin, her walking started to improve as well but she took a nasty fall in March of 2001, broke her leg badly and that did more damage to her than the 30 previous years of MS.

Prokarin isn't for everyone. The last numbers I saw showed about 1/3 of the users had several symptoms reduced or eliminated, 1/3 had one or two symptoms helped and 1/3 got no benefit whatsoever. I'm not sure that I would agree that the drug is expensive. A month's supply cost about $ 195.00. In many instances, the first month is offered free of charge depending on the approved pharmacy from where you purchased it. You know in this first month if the drug is going to have any effect on you. It is painless to apply (a trans dermal patch) and there is virtually no side effects at all. Of course, it must be prescribed by a doctor and that's where some people have a problem....some docs won't think outside the box and refuse to rx the drug. Marg's neuro wouldn't at first until he saw how she benefited from the Prokarin. He then changed his mind although he isn't a firm believer in it.

As for the National MS Society's treatment of Elaine Delack and Prokarin....I won't get into that now. "Disgusting" is probably the best word to use how they have dealt with this drug. You wouldn't believe some of the stories!!

Harry


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 4 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Histamine research

[ Go to pageGo to page: 1, 2 ]

bromley

20

2576

Mon Jun 18, 2007 10:42 am

HarryZ View the latest post

There are no new unread posts for this topic. histamine vasodilation

pbg

10

1403

Fri Oct 22, 2010 12:20 am

Algis View the latest post

There are no new unread posts for this topic. Histamine may be a possible drug target for MS

squiffy2

4

1168

Sun Feb 06, 2011 10:07 am

Wonderfulworld View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: