Brock--a few months back, you and I had a conversation about my daughter's EDSS score. I thought it was like .06. Just learned my daughter has never been told any of her EDSS scores.
She just ordered copies of all of her medical records from her MS specialist. They only recorded two EDSS scores ?????? The first one was 3.0 not a .06. (This in 2005).
What is also interesting to me is on her last trip when her MRIs determined the MS had stopped, her doctor put "0" for her EDSS score but NEVER did the test.
Does this sound normal, i.e., to not record the score and to put a score when not even testing???