edss scale

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby GeoGuy » Fri Nov 02, 2007 4:27 pm

Hi Terry,

I just wanted to add my two cents worth to this discussion.

Like you, I'm still fairly new to MS. I was diagnosed back in January of this year, when I had my first exaspiration . I was a 6.5 - 7 then and have recovered to a 1 - 1.5 (I think, based on self-assessment) In retrospec, I had blurry vision when I got hot for about 5 years before my first exaspiration). My main symptoms now are numbness and weakness on the left side, blurry and/or double vision when tired or overheated, and the famous MS hug.

I wouldn't focus on the freckle angle either. Like Loobie, I also have dark hair and eyes, tan easily, and do not have freckles.

A holistic approach is great and by all means use it if you are comfortable with it. But don't let your first experience with a neuro turn you off to western-style meds. I'm on Rebif myself. If your first neuro didn't please you, keep looking till you find one that works well [url]with[/url] you. I'm in that process myself now. The National MS website has lists of MS clinics around the country. Be sure to check your regional chapter website as well.

As for testing, I strongly recommend a yearly physical. Remember, just because we have MS we're not immune to other health problems. Talk over your concerns with your regular doctor and have him or her add any additional tests needed to address them. I have a yearly physical, and am otherwise quite healthy. As I joke with my primary care doc, I'm the healthest sick guy in Charlotte.

I would also like to echo what Ally said, MS is very unpredictable (God knows it surprised the hell out of me). I like to think of it as an adventure, because you never know what your next challange is going to be. So my last piece of advice is, and please excuse me for pontificating, but every morning when you wake up, and you feel half way decent, get up and go for as much as you can - live every day to fullest, and be happy.

Take care of your self, and never hesitate to ask a question here, chances are, someone here will have had an experience that they can relate to it.

Jack
RRMS since 01/07.
User avatar
GeoGuy
Family Elder
 
Posts: 133
Joined: Sat Sep 29, 2007 3:00 pm
Location: Charlotte, North Carolina

Postby Terry » Fri Nov 02, 2007 8:23 pm

Thanks, Jack.
I appreciate your post.
I will get as much out of my tomorrow as possible. You do the same..
User avatar
Terry
Family Elder
 
Posts: 500
Joined: Fri Oct 26, 2007 3:00 pm

Postby MaggieMae » Fri Nov 09, 2007 8:52 am

AC,

Thanks for the info on the sun lamp. I had read about another company, Sperti, that also makes the lamps. My husband has a lot of trouble with sleeping and his Vitamin D is low (even with vitamins).
User avatar
MaggieMae
Family Elder
 
Posts: 380
Joined: Wed May 23, 2007 3:00 pm
Location: Pennsylvania

Previous

Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: ElliotB, ribeye


Contact us | Terms of Service