MS TV programme on UK TV

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby MacKintosh » Sat Nov 17, 2007 6:51 am

Ah, per your usual, you have brightened my morning with the knowledge you care, Bromley. I'll continue posting where I choose, despite your intimidation.

And, by the way, I am not an 'abx person'. I am a person who has chosen to eradicate what I believe to be the cause of my MS and recover my quality of life, though.

Wishing you well, despite your antagonism toward your fellow MSers who are recovering from their MS nightmare. Cheers!
___________________________________________________________
Diagnosed 19 Aug 2005. On David Wheldon's antibiotic protocol for chlamydia pneumoniae infection/MS since 06 October 2005.
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Postby SarahLonglands » Sat Nov 17, 2007 7:29 am

Bloody hell, Brom': you must have had a bad week at work. Don't try to do anything on the Internet at the weekend: it'll just get you more frustrated.

Sarah :?
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Lyon » Sat Nov 17, 2007 7:59 am

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Postby bromley » Sat Nov 17, 2007 8:15 am

Sarah,

I still like your art work.

MacKintosh - I'm sure you're very nice really.


Ian

Before treatment: an angry bastard. After treatment: (on a good day) just a bastard (occassionally a bit nicer than that). Love machine status - no change post dx.
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Postby Muu » Sat Nov 17, 2007 10:21 am

Did someone mention lunch? you know the way to this little piggy's heart, Ian!
Hopefully you will be able to see it the programme. To summarise it covers 3 areas, use of cannaboids, potential stem cell bullets to repair myelin and finding the causes of ms.
With the use of cannaboids there is a 5 year trial going on in Plymouth to see whether use of cannaboid can assist, neuro protect or even reverse ms symptoms. Altho drs here sound optimistic it is really going to be a wait and see exercise. Interestingly when Michelle asked whether smoking regular mj would be of benefit now there was a negative response. Apparantly the cannaboids being trialled extract one particular element of mj that they are testing and that regular smoking of mj may have a detrimental affect.
The stem cell research seemed positive. This involve extracting stem cells from the patients own marrow and injecting it back into the bloodstream where it locates and repairs the damaged myelin. It was reported to be likely within Michelles lifetime (she's early 30's). I should be gleeful but yet it sounds too good to be true. Also I am always wary of hope raising especially where grants and tv cameras are involved. I really want to be proven wrong.
With regard to causes of ms- there seemed to be nothing new here. Genetics (no specifics) and geography. The geography def appears to tie in with Vit D exposure.
Interestingly enough there was nothing mentioned of the viral/EBV element that Prof Giovannoni believes plays a vital role.
Overall it was positive to watch. Interesting to hear what other people thought of it.
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Postby bromley » Sat Nov 17, 2007 11:55 am

Muu,

Lunch it is. I've got my second dose of Campath starting Monday week and three weeks off for Christmas, so we'll have to arrange for early in the new year.

I'll be in touch.

Ian
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Postby Lyon » Sat Nov 17, 2007 1:00 pm

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Postby TwistedHelix » Sun Nov 18, 2007 8:18 am

I watched the programme and it was very much a beginner's guide: pretty superficial and with about as much information in it as a "so you've just been diagnosed with MS" leaflet. Quite upbeat, especially the talk of hope for this generation of MS sufferers rather than the next.

Ian, when you say there has been no change in your love machine status, does that mean you are as good as before, or as bad? Perhaps Muu can fill us in on your post prandial activities, with pictures…
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Postby whyRwehere » Mon Nov 19, 2007 2:07 am

I watched this show and wondered what people were talking about...what "end"? I found the presenter's cheery dialogue quite nauseating and wondered why they bothered making this "documentary". Obviously for people newly diagnosed, because well people probably aren't interested and people diagnosed for a while are probably a bit jaded.
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Postby speedbird » Mon Nov 19, 2007 3:34 am

Also be aware that Michelle was RR and not much was said about SPMS and/or PPMS. It was nicely done though and informative for those recently diagnosed and carers.

You can also get an information pack connected with the show.
Progressive MS dx. 12/06. Currently on CAP for CPN: Wheldon protocol. LDN 4.5ml.
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