Where I am - still so confused!

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Where I am - still so confused!

Postby MrsGeorge » Thu Feb 07, 2008 4:52 am

It still seems like you guys are talking a foreign language, but I think I am getting there!

I still haven't had a definite dx - just lots of murmurings of MS from docs. I saw the neuro on 8th Jan and had MRi on 16th (bloody fast for NHS) and I now have to wait until 6th March for results! Although I have not been given a dx, the neuro I saw on 8th has transferred me to the service of the neuro that specialises in MS!

They are waiting until my next appointment before they decide whether to do a lumbar puncture. I don't if there is enough to dx without. 2 instances of symptoms and an MRI (but I don't know what it shows).

Over the last month things have improved massively for me and I am finding walking much easier and I am far less unsteady - unless i get very stressed or overtired.

I guess I am still very unsettled because I haven't had a definite dx and until I get one I can't make decisions about the future. The neuro I saw in Jan was talking about putting me on meds but I am tring for a baby and don't want to take any meds that would hurt the baby. My sister tried to talk to me the other day to tell me that I should wait on getting pregnant as my physical condition at christmas scared her - the deterioration from when she saw me in November. But as I said, things are massively better now!

Sorry for the essay - I can't really talk anywhere else.
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Postby Punchy » Thu Feb 07, 2008 8:53 am

Sounds like we're in somewhat similar situations. And as you can see from my recent post, I don't have a whole lot of answers.

I would suggest you hold off on the pregnancy until you've had the run of usual tests, and it sound like you're almost done. I know it's frustrating to wait but it's important to know what you're dealing with.

Doctors generally prefer to start aggressive treatment immediately after diagnosis, because it is a such a critical stage. The good news is, pregnancy protects you from MS, so maybe your doctor will be okay with starting medication after you have your baby.

I hope things move along quickly for you. No one wants to find out they have MS, but at least an answer allows you to plan for your future. This forum is a great resource for information and support. :)
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Postby MattB » Fri Feb 08, 2008 9:29 pm

Punchy wrote:The good news is, pregnancy protects you from MS, so maybe your doctor will be okay with starting medication after you have your baby.

Pregnancy protects you from MS?
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Postby RuSmolikova » Sat Feb 09, 2008 6:24 am

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Postby jimmylegs » Sat Feb 09, 2008 5:46 pm

it does, particularly in the third trimester. can't recall who responded to my early musings along this tangent, ie why third trimester, and somebody posted that, interestingly, plasma 1,25dihydroxycholecaciferol spikes during this phase. from what i read two years ago but can't put my finger on the study just now, it's so similar to the effects of interferon.
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Postby MrsGeorge » Tue Feb 12, 2008 6:23 am

I wondered about that! I am really unsure about what to do if I do get the dx - I have been trying for 2 years now and thought of stopping is heartbreaking.

My appointment has been postponed til the end of March so they can schedule me with the MS specialist (who the orignal appt wasn't with apparently) - that sounds like a diagnosis in itself. On the plus side, I know someone who sees that doc and he diagnoses on symptoms and mri alone so I shouldn't have to have a lumbar puncture!

Do the drugs make that much difference? What exactly do they do? - Still know very little about that side of things.
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