AC, I am not commenting on you - I love your posts, you are a very valuable member of this community, and I know your husband is truly fortunate to have you cheering him on - go for it!
But unfortunately, this post is a little dark too...
I am obviously not American, and Montel's show has never been on air where I live, so I cannot comment directly.
But, having read the thread, I couln't resist a comment, and I hope you all don't mind a non-US person butting in...
These 'fighters', where, if your attitude is right and you think positive thoughts etc, they say you will be fine or get better, or stay in remission - it really bites me!
It almost makes having any functional deficit as a result of ms, your own fault...Your own negativity and repressed stress caused this, or you are not fighting enough, or you eat too much animal fat, or carbs, or are not taking the right supplements
My friend coined a phrase - the criminalization of illness
Very apt, actually - one is made to feel guilty and culpable - having ms is my fault, and not getting better is also my fault. I was occasionally given this impression by certain well-meaning (I hope) people when I had cancer too. A question of mind over matter...
My mother-in-law also believes that she had ms because she went through a tired patch in her 30's, but she has been in remission for over 40 yrs in her own mind - she didn't ever have ms (she is 77 and healthy as a horse) - so she willed herself well and didn't let it get her down, so I shouldn't give in either! I must give up those stupid injections that make me feel bad, stop having a rest, throw away my stick because someone in her 40's is too young for a stick etc. I could scream sometimes!
Anyway, my point is to agree with everyone - no-one wants this, we all do everything we can to help ourselves (including working when we can and resting if we need it!), and we all wish it would just go away.
But it won't, so we have to deal with it as best we can, and I believe that we all fight in our own ways to stay as healthy as possible - and yes, this forum, our friends, and our families are vital (at least the supportive ones, anyway!).
I also agree that a more realistic picture of ms in the media is necessary, but it needs to show the range of disabilities that is possible with this disease - so while there are folks out there who are only really mildly affected by ms, there are others who are wheelchair or bed-bound, and they are arguably the ones who need support and help the most, especially from the medical community - some treatment really needs to be found - chanting and meditation won't 'cure 'em'! But I suppose it won't hurt either - but don't imply that my physical problems are my fault because I don't chant
Lew, I would also agree with you totally ( I am very agreable tonight) - it is important to do as much as you can for as long as you can, so there are no regrets later, and so you stay involved and feel you are contributing - helps stave off depression too... I gave up work a few months ago - I had a very high-pressured job in senior management that involved a lot of travel and I had 2 young kids - and after 2 really bad relapses, I was just getting sicker and my doc thought I might be spms. So i am now a full time Mom (I am the editor-in-chief of a quarterly health education magazine though), and in fact, both my kids were born in April, so I had a birthday party for them yesterday (they turned 7 & 5) - it was the first one I gave at home for them, as previously because of work, ill-health and other stressors, I was unable to do this, So, my kids are getting valuable time with Mom, I get rest in the mornings when they are at school, and I do a bit of work at my own speed - win-win! My health has improved - my edss was up at 5 or 5.5 and now it is probably 4.5, and if I don't relapse further, maybe it will get even better (hope springs eternal). So we all have to arrange our lives to suit our needs and the last thing we need is to be judged for it - that is why I love this site.