This disease is ******er. I also suffer from foot burn which is especially prominent at night. When I started minocycline the burning altered almost immediately and seemed to diminish but then it returned. The trial data on the tetracycline class of antibiotic does look promising so that might be worth pursuing.
I very recently have upped my dosage of maximised curcuminoids to 18grams a day. I have noted a radical reduction in tingling and pain in the foot, knee and leg during the day. This has been bothering me since July 07. I can't be sure that it is the curcumin but it seems likely. I still get pain on the sole of my foot when I go to bed but I've only been taking this dose for 3 days. I'm quite excited that it has seemingly had such a big effect but it could just be random.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,