This Is MS Multiple Sclerosis Community: Knowledge & Support

Was AWESOME!! He spent over 2 hours with me, talking about many things. He was actually more interested in hearing about what I had done in life and my artwork than anything

He said he treats many with burning mouth syndrome, and he's familiar with the treatment methods for this. He began by discussing neurontin, and then he actually asked me what I think I should be taking. Woah.... a doctor who values my opinion?! So I told him Amitriptyline, because not only has it been shown to work for BMS, but also migraine prevention (I'm a migraine sufferer) and depression (I think this is actually more a part of my life than I let on).

So he put me on a combination of neurontin and amitriptyline. 10mg of Amitriptyline 1 at bedtime, and 100mg of neurontin 1 at bedtime to start. After 1 week, I increase the dose of Neurontin to 200mg twice daily, then after 2 weeks 300mg of Neurontin 3 times daily.. to when I will take 300mg 3 times daily, and more at bedtime. I may not even get up to a dose this high. It depends on when the burning mouth finally disappears. Then I'll maintain that level until otherwise directed.

So very happy with the visit in general. He answered a lot of questions and showed me what my lumbar puncture results look like... a little computer print out with 2 bars, 1 representing my blood, the other my spinal fluid with bands in it. Really neat!

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Dx RRMS March 5, 2008.

Great news, having someone on your side makes such a huge difference!
My first neuro was a depressed negative fellow. I left him not because I thought him poor but because I could not take his negativity. My next doc was a great upbeat kind of guy with a "let's se what we can do" attitude. I loved that. Sounds like you got the same kind of fellow!

So glad to hear that it went well & that you got a good doc!