Emotional State directly related to Physical Disability

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Loobie
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Post by Loobie »

I agree GWA. Everything up to the point where I'm at was so spot on to what I have felt and thought. My neuro. and coordinator are both getting a copy on Tuesday when I go in for Tovaxin shot #4. Like Dom said, you really can't quite relate until you are actually in that situation, but I think it brings an understanding that is much clearer than the raw EDSS.
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FIESTAFROG
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Post by FIESTAFROG »

I guess im a 1.0 then. No disability but have vertigo. That seems to be my FS?
Life is hard, buy a helmet.....
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msmything
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Post by msmything »

Dom, I agree that there is so much more to this disease than the tracking of physical disability
That said, Robbie the info you posted is fabulous, and right on the money.
I find for me that the worse my physical symptoms get the more I miss the full use of my brain.
Where it was at one time the most horrifying thought to me to need assistance with walking, it's way worse and far more scary to feel so many days that I need assistance with thinking!!!
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MrsGeorge
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Post by MrsGeorge »

Am 3.5 to 4.5
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2gentle
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Disability scale and mood

Post by 2gentle »

Robbie,

When I see my neuro next week, I am taking a copy of this w/me, for her to read, and I will refuse to leave UNTIL she reads it!

This is powerful!

Thank you for sharing it.
Diane
Every journey begins with a single step...Diane
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