Emotional State directly related to Physical Disability

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby Loobie » Thu Jun 19, 2008 9:53 am

I agree GWA. Everything up to the point where I'm at was so spot on to what I have felt and thought. My neuro. and coordinator are both getting a copy on Tuesday when I go in for Tovaxin shot #4. Like Dom said, you really can't quite relate until you are actually in that situation, but I think it brings an understanding that is much clearer than the raw EDSS.
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Postby FIESTAFROG » Thu Jun 19, 2008 9:58 am

I guess im a 1.0 then. No disability but have vertigo. That seems to be my FS?
Life is hard, buy a helmet.....
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Postby msmything » Thu Jun 19, 2008 5:37 pm

Dom, I agree that there is so much more to this disease than the tracking of physical disability
That said, Robbie the info you posted is fabulous, and right on the money.
I find for me that the worse my physical symptoms get the more I miss the full use of my brain.
Where it was at one time the most horrifying thought to me to need assistance with walking, it's way worse and far more scary to feel so many days that I need assistance with thinking!!!
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Postby MrsGeorge » Fri Jun 20, 2008 3:14 am

Am 3.5 to 4.5
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Disability scale and mood

Postby 2gentle » Fri Jun 20, 2008 1:34 pm


When I see my neuro next week, I am taking a copy of this w/me, for her to read, and I will refuse to leave UNTIL she reads it!

This is powerful!

Thank you for sharing it.
Every journey begins with a single step...Diane
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