by MOMTO3 » Fri Jan 07, 2005 2:18 pm
hello all,
nice to hear other peoples experience with telling others, as suprising as this may sound, i still havent told my children. i was dx'ed 6 yrs ago, and most of my symptoms as painful or agitating as they maybe, can be hidden. it is mostly numb hands or feet. it was diffucult to explain when i had to be hospitalized, and as my feeling i did not lie, i told them it was because of problems with my hands and i needed medicine from the iv, which was true, i know this sounds weird, but recently we had lost our house and had to move, and i just feellike i want to keep the bad stuff away from my children and protect them as long as i can. i have 3 children, 11,9 and 5. the only people whoknow are my husband my parents and my aunt(which my mother told for support i guess) i havent told anyone mostly for the reason of, the pity looks while they say how are you, in that condesending baby voice. or like my husband does, he is always dont do this and no no let me do it. i had to explain quite a few times, how awful and useless that made me feel, i had to promise him that if i needed help i would ask. i have always been a very self sufficent person, but as time is going on i realize more and more my limitations. i know i can not clean and clean and expect to feel fine afterwards. i must slowly take my time, and takes breaks frequently. sorry now i am rambling off topic. as far as the main question, no, noone outside of immediate family, knows and i guess as long as i can keep it to myself, i will. i am not saying i feel it is wrong to tell everyone, or right to tell noone. i feel it is totally up to how you feel. whatever makes you comfortable, and again i am glad to see others experiences with this. and like to thank all for this board, it has helped me tons