If it's on your mind and it has to do with multiple sclerosis in any way, post it here.


Postby jh06ph » Wed Aug 06, 2008 8:52 pm

Hi there!! I'm new, obviously... and my name is Jen. I had my first symptom at 14, diagnosed at 15. Now that I'm 2 months away from being 20, my last visit with my neuro was a little odd for me. He told me that I might have NMO because I have inflamation in my spine, so I'm sitting on pins and needles for my results. Does anybody else have MS and NMO? I'm so confused as to what exactly it does, and what it is... the internet can only take me so far.

Also, I seem to get this weird feeling a couple times a day... it's almost like my whole body goes weak for a split moment, and I can feel my body falling forward, but I catch myself after only having moved just a couple inches. It's hard to describe, but it feels like I've lost all control for a moment, and it's just complete weakness. Does anybody else have anything remotely similar to this, or is it just me?

Being so young with MS is something that I've come to terms with... I'm just worried as to how it will affect the rest of my adult life. What should I do if I encounter relationships? Marriage? Children??? Can I still have all those things with MS? Lately I just feel so alone, because even though I have a wonderful boyfriend, I can't expect him to understand what I'm going through. And then there's the issue of funding for treatment, and the deductible if I get married... etc. Would it even be wise to get married at all?? I've been harbouring all these questions and doubt for such a long time, because no one would understand me if I spoke them out loud. Forgive this long message, but it's a good couple years' worth of pent up ranting. Thanks for reading though... :D

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Postby MrsGeorge » Thu Aug 07, 2008 12:58 am

Hi Jen - welcome to thisisms! Must be tough having been diagnosed so young. You lots of questions - I did see a linky in the daily life page to facebook groups and one was for people under 25 I believe - you may find it helpful.

I guess what I would say is that you should not rule anything out purely because you have MS. I am married to a wonderful guy who loves me for who I am, the MS doesn't come into it. There are also a number of us here who are working on starting a family!

Sorry I can't help with any of your other questions - there is a wealth of knowledge on here though - I'm sure someone will have something to say!

take care
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Postby jimmylegs » Thu Aug 07, 2008 6:41 am

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