This must be so tough to watch. Can't even imagine. But you are a wise Mom not to get upset or freak out your daughter. It's never easy, is it?
I'm wondering if there's any way to do a complete physical with some simple blood tests, to rule out vitamin deficiencies like B12, vit D, Hughes syndrome, anemia, etc. It wouldn't be as expensive or scary as the full blown MS diagnosis, but it might provide some answers and areas she can improve with diet and supplements. Do you have a good GP or did you like her pediatrician? They might help you out, knowing she's uninsured.
Then again, this is just how I'd handle it....but like you said, you're not even sure if you have much faith in the medical world, and I completely understand that, Terry. Whatever you decide, know that you, your family and daughter are in my thoughts.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09