Appointment with endocrinologist

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Appointment with endocrinologist

Postby elly » Wed Nov 12, 2008 8:35 pm

Hi Everyone,

A few months ago i posted because my vit D level was low and my neuro referred me to see an endocrinologist.

Well that appointment was this morning.

He basically wants me to continue taking 1000iu Vit d but he has ordered me another blood test just to see if that has worked to increase the level.
He says that taking the supplement is just as good as getting it from the sun.
He also recommends approx 15 minutes in the sun with out any barriers if possible.
He recommends that i lose some weight :oops: which i was working on anyway and i have 15 kgs to go.

In regards to my children he recommends that i have their vit D levels checked...mmm can you imagine taking a 2 and 4 year old to have a blood test?
They can also be given supplements too which are specifically for children of course. He says that this MAY help to decrease the risk of them getting ms.

He believes that there is a definate link between ms and low vit d but he doesn't know if it's just that or if there is a missing link that just hasn't been discovered yet.

He told me heaps of things as the appointment went for ages and as i remember them i will post.
One thing that stands out is low fat diet for ms as he says that we are inflammatory people anyway and being overweight promotes inflammation, he also mentioned cytokines in this context.
He also thinks that as vit D is a fat soluble vit, if you are overweight you may need more to bring your levels up.

I know this is all over the place but so was the appointment...i brought my boys in with me so not too much time to concentrate :roll: :wink:

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Postby daverestonvirginia » Fri Nov 14, 2008 12:42 pm

That is great that you got the chance to visit an endocrinologist. I wish I had had some better medical advice while attempting to raise my vitamin d level. It has come as a real surprise to me how much vitamin d I have had to take to keep my levels were we believe they need to be to help with the MS. I just had my October vitamin d level check and it is at 135 nmol/L, which is good, only to get it there I spent a good bit of time in the sun plus took 4,500 iu's of vitamin d a day over the last six months. What has worked for me is just making sure I get in for a vitamin d level check every six months in April and October so I can adjust my vitamin d supplement dosage level. It is a bit of effort, but I think it is worth it. Since everyone seems to be a little different in how much supplement is needed, does not seem to follow a general rule very well.
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RE: Endocrinologist

Postby Cojack » Wed Dec 03, 2008 5:50 pm


Has anyone read THE MS SOLUTION..written by a 'endo/neuro she calls herself/who 'cured' ostensibly...her MS. Great book/good approach to MS. Appears very logical. I bent on getting an appointment with one. Did you're endo order hormone, thyroid, adrenal testing?

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Postby Shayk » Wed Dec 03, 2008 8:11 pm


Thanks for the heads up on the book "The MS Solution".

I read the reviews and it sounds like it's right up my alley. :) Cheer alerted us to Simpson's other book and I was hoping she'd write a book about MS and hormones from the perspective of neurodegeneration.

I haven't seen an endocrinologist but I've had my hormone levels tested(adrenal, thyroid and so called "ovarian"--even though the ovarian hormones are also synthesized in the brain) and definitely think having balanced and healthy hormone levels could be important for those of us with MS.

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