The List of Questions

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The List of Questions

Postby LiquidSkin » Thu Dec 11, 2008 5:07 pm

How long did it take a doctor to diagnosis you? I was doing some research and it stated that it takes 6 month to diagnosis MS to be sure, is this a myth or no, cause I was dianose within a month ( had MRI met doctor he told me I had ms, did a spinal tab to confirm) with only one attack and no repeat attack at all since my diagnosis nearly 6 months ago.

If you had a Lumbar Puncture(Spinal Tap) what were your results?, and do you know what it means to have faint oligclonal bands means? Could the test be wrong or misdone?

Does your doctor exaggeration stuff when your applying state aid, I mean he got my age wrong, the date he dianosed me by a month and my symptoms are also exaggeration, it says I pee my pants all the time, I told him I had increase urgency but not lack of control, there are several others, I was wondering if that is what he does for the state aid summary or is that shit really in his notes, is it possible he doesnt know my age?? or when he dianosed me???
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Postby cheerleader » Thu Dec 11, 2008 5:50 pm

Hey Liquid...
sounds like you might be happier with a new neuro, one who listens to you and gets your facts straight. An MS diagnosis should be enough for the state aid paperwork without exaggeration, but I could be wrong. You need to sit down with this doctor and tell him/her about all the errors and your concerns.

The MacDonald criteria for MS (which is what most neuros follow) says you need to have another attack or relapse separated in time from your first presenting attack, lesion (s) on your MRI, and/or positive bands in your spinal fluid (showing the protein which results from the demyelenating lesions.) Right now, without a second attack, you are called "clinically isolated syndrome." This is what the neuro calls my husband, since he has not had a second attack, no new lesions or progression since diagnosis. But we're treating him, even if it's not "official" MS since he had so many lesions at presentation. Here's the full diagnostic criteria for you...since I've simplified it.
http://www.mult-sclerosis.org/DiagnosticCriteria.html
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby GeoGuy » Thu Dec 11, 2008 8:49 pm

Those are interesting questions Liquid. Just as MS effects each of us differently, so each story of diagnosis is unique. My own diagnosis came very quickly, less than a week after my first serious flare. Basically what happened was I woke up one morning with vertigo and double vision. A visit to my doctor led to an MRI, which showed an enhancing lesion in my brainstem and several non-enhancing lesions in other parts of my brain. Thus I met the criteria for multiple lesions seperated by space and time. I never had the spinal tap.

And I agree with Cheer, sounds like you might be need a more attentive neuro.

Jack
RRMS since 01/07.
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