Types of MS Pain..Please describe yours

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby notasperfectasyou » Mon Jan 05, 2009 9:49 pm

ok, ok ....

you take them for a few days until you feel better. I don't think the script is generally more than 2 weeks.

Solumedural is a steroid IV that's done to settle exaserbations. The IV is generally once a day for 5 days.

and I don't know anythign about zinc.

Ken
User avatar
notasperfectasyou
Family Elder
 
Posts: 774
Joined: Thu Feb 09, 2006 4:00 pm
Location: Northern Virginia

Advertisement

Postby jimmylegs » Wed Jan 07, 2009 2:09 pm

o okay thanks for the explanation. now do you want to know about zinc at all? ;)
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby jimmylegs » Wed Jan 07, 2009 2:19 pm

miss tt. a note for your reference:

http://www.blatmanpainclinic.com/blat_articles_12.htm

Foods and Medications That Contribute to Nervous System Damage Should Not Be Eaten

* Nutrasweet/Aspartame
* Olestra
* Margarine
* Aspartame
o Aspartame causes elevation in serum methanol
+ Knopp et al., J Toxicol Environ Health, 1976;2:417-428
o Aspartame causes increase in serum methanol in rats and humans
+ Stegink et al J Nutr. 1983:113:1600-1606
o Aspartame completely metabolized in gut and absorbed as aspartate, phenylalanine, and methanol, but doesn’t cause heath problem
+ Leon et al. Arch Intern Med. 1989;149:2318-2324
o Oral aspartame caused rise in serum methanol in men and rats
+ Cappellini Metabolism 1991;Jun;40(6):612-18
o Dietary labeled aspartame results in labeled formaldehyde bound to tissue in rats
+ Trocho et al. Departament de Bioquimica, Universitat de Barcelona, Spain.
o Repeated
+ by Hertelendy et al. Gastroenterol. 1993;88:737-743

ICMP Journal Spring 1997 (International Congress for Medical Professionals)

* Aspartame
o 40% aspartic acid
o 50% phenylalanine
o 10% methanol -- converts to
+ Formaldehyde and formic acid (ant sting poison)
* Free methanol is created when heated above 86°F
o Cumulative poison – slow rate of excretion
o 7.8 mg/day (EPA)
o Average diet drink 15-36mg/can
* Woodrow et al. Journal Appl Nutr 35(1):42-53

Methanol Is Neurotoxic

* CNS dysfunction
* Brain tumors
* Chronic widespread body pain in some patients
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby jimmylegs » Wed Jan 07, 2009 2:24 pm

hi jaded sorry i missed this question earlier.
i am not the mountain of knowledge though, thank the googlematic extendabrain. although i guess some of that reading does stick, a little :)

glucocorticoid is one of the drugs that can deplete the b-complex resulting in neuropathic pain.
i was asking if you had had any gc treatments to see if maybe that would be why you were having your problems with burning.

what medications do you take? i could look for nutrient interactions and see if anything turns up.

hi jimmy

no I don't get glutocorticoid anything...what would that help and how could I get that?

You are such a mountain of knowledge - much appreciated as ever.


J.
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby notasperfectasyou » Wed Jan 07, 2009 2:56 pm

jimmylegs wrote:o okay thanks for the explanation. now do you want to know about zinc at all? ;)


No, I want to avoid all new information, I want to only know what the neurologist tells me. :wink:

Please do share.........
Ken
User avatar
notasperfectasyou
Family Elder
 
Posts: 774
Joined: Thu Feb 09, 2006 4:00 pm
Location: Northern Virginia

MRI RESULTS

Postby tt89 » Wed Jan 07, 2009 5:25 pm

I got my MRI results....but I see the docs tomorrow. They changed my appt but they called

Ok..Drum Roll Please

The spot on the left side of my brain has all but disappeared. It has drastically decreased. They had several radiologists look at the films before lettting me know. The main on I have is still there and unchanged..not worse but the same but the other one..is almost gone. they said its a miracle..not seen to often..is that true? Well I pray alot so I think my prayers were heard...either way...its good news!

WOW.....and this is with NO SHOTS for 6 mos..but the docs don't know that and they were like "Stay on the shots..they are helping"....so now I have to fess up when I am seen tomorrow and I know I'll be met with lots of attitude...they seriously want me on some sort of shots....

Any ideas how to deal with that. I will plead my case best I can but I notice the PA I see when the Neuro is not there...cops an attitude at the NO MEDS thingy...I went through that with her when I stopped Betasron..and thats how I got on Copaxone..I caved in.

Ok...Blood Tests revealed...Vit D dropped again..so back to Rx of that.
My WBC was high...which explains the nonstop fever I battle and we are going to have to figure that out. I think they are doing blood cultures tomorrow..... My Potassium was low but I have that happen at times for that they want more OJ and Bannanas ( Don't worry Jimmy..still not giving up the Diet Coke)

Ok....I got my Nature Calm Magnesium in today!!! I made my first mug...how much a day do you take and when did you notice you felt better.

I was soooooo happy to get that package!


I'm going to have them test that too. They didn't test it last time.

Thanks to all...

I'm happy about the MRI!!!! Im still in the RRMS catagory they said..I love it....CATAGORY!!! Sheesh :?

Look forward to hearing from you

T
User avatar
tt89
Family Member
 
Posts: 97
Joined: Tue Aug 12, 2008 3:00 pm
Location: USA

Postby cheerleader » Wed Jan 07, 2009 5:35 pm

T-
So happy for you. Nothing is written in stone with MS...your MRI proves that. Stay the course, and keep healing!

Jeff takes 600mg. of Natural Calm at night before bed...about 3 teaspoons. I gave him 3 tablespoons the first time we tried it (forgot my glasses) and he had to stay close to the toilet the next day 8O ( Was that TMI?) Mag citrate is a laxative.

Enjoy your miracle, and know that we're all cheering you on-
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5047
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Postby jimmylegs » Wed Jan 07, 2009 6:45 pm

LMAO cheer i forgot about that tablespoon episode HAHA
i can't take natural calm that strong unfortunately. i had some pills that were 250mg mag citrate for a while. if i took three in a day, look out.
so about how long it takes, what happened to me was a pharmacist told me to take it, and i took probably only 250 per day for about two days, and i got better. i thought it was crazy and stopped, and the problems came back. so i started again, and the problems went away again. then i noticed that i could feel the magnesium kicking in about 2 hours after i took it. now, i have enough stored up that my muscles don't actually palpitate when the magnesium hits. but yea you shouldn't have to wait for long. great news about that disappearing lesion! fight the power... and diet coke lol
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby Jaded » Thu Jan 08, 2009 1:47 am

Hi jimmy

i take ldn, that's all. I have supps but I don't take them as regularly as I should.


When I was tested after my dx a few years ago I was majorly down on vitamin b's and d. I did take them regularly for ages....just got sidetracked I guess.

cheers

J.
Jaded
Family Elder
 
Posts: 196
Joined: Tue Jul 26, 2005 3:00 pm

Postby tt89 » Thu Jan 08, 2009 4:12 am

Oh boy did I ever laugh. You guys are always great for lifting one spirits...I was feeling pretty good but you so made me laugh about the Natures Calm Mag..

I only drank one mug with one 1 spoon...Sheesh....Glad I didn't do more...it says you can do up to 3 spoons...Think I will wait till I do something like that...


I'll give you the rest of the details very soon.
Thanks a bunch for everything

Im having the right leg checked out for other stuff and the pesky fever too. I have fallen about 5 times in the last 6 mos and so perhaps my right leg is so bad due to the falls and may have injured something

Sometimes its hard to tell between MS and something else :)
User avatar
tt89
Family Member
 
Posts: 97
Joined: Tue Aug 12, 2008 3:00 pm
Location: USA

Postby jimmylegs » Thu Jan 08, 2009 6:02 am

hey there jaded, had any tests along the b and d line any time lately?

hope you can solve the leg mystery soon tt!
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby Jaded » Thu Jan 08, 2009 7:10 am

Not done anything recently jimmy. It cost me a fortune last time as I did it privately.

Had some bloods done a couple of years ago where it looked like I was overdoing the b12, so I eased off...

J.
Jaded
Family Elder
 
Posts: 196
Joined: Tue Jul 26, 2005 3:00 pm

Postby jimmylegs » Thu Jan 08, 2009 7:51 am

wow where are you j? can't get bloodwork covered? i usually would only pay for the more "out-there" tests. like i think i did homocysteine and mma one time before i knew what the heck i was doing.
did you see that post by nick where you can get an in-home d3 test for $65 (i presume CDN) whereas lab tests usually cost one or two hundred bucks?
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

Postby Jaded » Thu Jan 08, 2009 8:18 am

I'm in the UK jimmy, my GP is not very sympathetic - she has to think about her budget! All I can think about is wonder what she does to earn £300k a year!!!!!

J.
Jaded
Family Elder
 
Posts: 196
Joined: Tue Jul 26, 2005 3:00 pm

Postby jimmylegs » Thu Jan 08, 2009 8:28 am

ouch! i used to have a doc like that, no fun. :(
jimmylegs
Volunteer Moderator
 
Posts: 9032
Joined: Sat Mar 11, 2006 4:00 pm

PreviousNext

Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service