OK Here is goes
Jimmy..Yes I have had a constant Mag and Vit D issue but nothing really helped...they'd go back up but then drop again..
as well as Potassium.
Fever still present...they did a U/A to make sure there is not UTI..I would not know if I had one or not. I have to potty 100 times a day/night and to the point I don't get good sleep but there is also an issue of a "Virus" due to being overseas.
Leg pain- may not be an MS thing..the muscle part/cramps yes but the nerve thingy..no because it generates in the foot....like the back of my heel... going to see Ortho for that. She referred me to one.
Told them about NO MEDS. They sort of figured I'd go off them as I was just not sold on them from jump street and to me I feel better OFF them. I got the speech about several of their patients who are my age group and in Nursing homes because they cannot walk, do this or that..as a result of NOT taking the shots. Not sure what to think about that.
I saw my MRI...Looks really good on the left..the other spot is unchanged..
One Nurse I know from somewhere else brought up this point of "Are you SURE you have MS...I mean two spots does not qualify a diagnosis of MS" but thats what I've been told over and over by the docs..I do have MS. Confirmed with MRI, Spinal Tap ( positive for Onco Bands..etc).. She feels I have some sort of Neuro Virus....
Ok..next..They want me to try a small amount of Baclofen again at bedtime... Not sure yet about that
Im on my Vit D, B and the Mag now..and the pain meds as needed. They remarked how well I handle my pain..and how little pain meds Ive used in the last year. They also said "don't stay in pain just not to use a narc med for pain..if you need it take it" Well I'll be the judge of that...and how much I need/use...I don't like that stuff to start with.
She felt my walking was stiff but today was a not so good day. She did say my neuro tests..reflexes and all were good.
Blood pressure up some. I think that was stress of being in that place...
They are going to have me repeat bloodwork....in a week..and will let me know about the U/A test. They did do blood cultures..
Oh and...No Gout....Uric Acid was perfect...so thats good news..she attributes that nerve pain to either an injury from the few falls I have had or the MS...but we will see what Neuro says and have an MRI done for the leg..
Can't think of anything else...but if I do I'll post
Thanks to all
Oh...they SERIOUSlY want me back on meds. They said only Copaxone or they will consider Tysabri....due to my not being able to handle Betaseron/Interferons...no more of that..not even trying Rebif and Avenox they do not like