fantastic tt!!! keep up the good work
glad you're here early dixie, and taking control. can you tell me if you've had any bloodwork done that has to do with nutrition?
at any rate, even without a diagnosis it sounds to me like you can get some improvement with supplements.
ginkgo will likely help some with the brain fog. i get that a bit sometimes too, and the gingko helps me.
do you drink lots of water and/or herbal tea? if so, do keep it up!
the essential fatty acids are also an excellent idea. fish oil makes me gag too. i found a brand of 1000mg capsules which i keep in the fridge, and i take it right before i go to sleep. it's not ideal, but if it repeats on me, at least i never know about it
okay this next bit will be about B vitamins for nerve function, plus D3 and associated vits and mins for immune function and pain relief
i had carpal tunnel too. b vitamins are good for that, and for sensory problems too. the b-complex is used at high dosages in an old 70s protocol by klenner. without getting into the whole klenner regimen, you can megadose b-complex for a week and then level off.
in 2006 i modified the klenner protocol for my own use and ignored some of the details, even so it was one of the highlight moments of turning my symptoms around. good stuff. before that i had taken only b12 and it had worked to resolve numbness for a couple of years but then it stopped working. i have decided that it was because the rest of my b-complex was so depleted the b12 had nothing to work with. once i added the rest, it was miraculous.
to megadose b-complex approximately a la klenner, pick up a bottle of b-50 complex. take 2 with each meal for a week. then you can drop back to one or two b-50s per day.
how much vit D do you take daily? you need to get the serum level up over 100nmol/L [40ng/mL] to minimize MS risk. there is published peer reviewed research on that. you might need a megadose to get you up into that range, then a maintenance daily dose that will vary depending on where you live and how much time you spend outside stark naked
my hospital says to jump 50nmol/L fast, take 50,000IU per day for 10 days. researcher vieth out of toronto says 4000IU per day is a good daily maintenance dose with no toxicity concerns. if you're out in the sun a lot in the summer, you can probably drop the daily to 2000 but bump it back up to 4000 in the winter (this is for if you live north of 40).
it is important to balance your d3 intake with 1200mg calcium, 600mg magnesium, 50mg zinc, and vitamin K.
magnesium is very important in relieving symptoms in ms. calcium and magnesium are responsible for many things but one is the function of muscles, their contraction and relaxation. if your muscles are too tense, magnesium is very likely to help. i can't even keep track any more of how many people here and in my personal life have been helped with all kinds of diff symptoms using mag.
magnesium gets eaten up by d3 supplementation so you need to take some of your daily mag away from the d3. if you take one at bedtime it can help send you off to sleep. i suspect it will help with the pain at your ribcage, which sounds like our old pal the MS hug.
magnesium is hard to absorb so if you take too much at one time you'll be running for the loo. find as soluble a form as you can, like mag citrate. also get as much as you can from food sources.
zinc is statistically lower in ms patients and it's VERY important. looking at the research, which you can find referenced elsewhere here on thisisms, women with ms average 12 (10-14) .[... i think the units are nmol/L there EDIT: nope the units are µmol/L]. healthy people have levels just over 18. i have read about excess symptoms starting up around the 22 mark. my lab says the normal range is 11.5-18.5... don't be fooled by the term "normal" range.
here on the forum, thanks to cureorbust, we are starting to pick up on the importance of vitamin K in the d3 balancing act. "high dose" d3 supplementation can interfere with vitamin K. i haven't checked yet on what amounts are needed to deplete K but i'm sure we'll get to it!
yesterday for the first time i saw a bottle of vitamind3 supps in the store, with vit K in it too. one bottle had 100mcg vit K blended with the d, and the other had 120mcg of vit K. sadly i didn't check the amount of d in each pill, but one was a jamieson product so that will be easy to check.
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last of all to touch on antioxidants, the klenner protocol is big on antioxidants like C and E. besides being antioxidants, C helps you use the other nutrients you consume, and E is really important for the health of your blood vessels.
if you haven't already, you may soon read about the focus on vascular concerns in ms. the klenner protocol does not mention this, but it does discuss muscular and liver damage when not enough vit E is present.
VITAMINS C AND E
you can take a couple grams of C per day (klenner suggests up to 10g!), and for the E, the klenner protocol advises 800 IU with each meal. i did this for 3 days with no ill effects, and i don't *normally* take E every day but right now i'm taking 800IU every day.
i've read studies in rats looking at toxicity and they feed them 6000IU vit E per kg body weight every day. so if you decide to go for a short burst of E, i suggest trying to find a bottle of 400IU capsules containing a blend of 4 tocopherols and 4 tocotrienols. you can take 2 with each meal for a week and then back off to one per day. that high dose regimen of 2400 units per day for a week works out to in the neighbourhood of probably 20-40IU/kg/d depending how much you weigh.
whew! holy moly it got late - better split for now take it easy
I have dizziness, brain fog and some girdling pain in my ribcage. Oh and fatigue, how could I forget the fatigue?
After MRIs (non-specific white spots), EEG (slowing of some parts of the brain) and a Nerve Conduction study (carpal tunnel in both hands, nothing else. My Neuro is taking a wait and see position. I am thinking getting a second opinion.
I am interested in supplementation. I have already started vitamin D. My Endo tested me for that and I was very low. Fish Oil makes me sick but I did start on EFAs. I also take B-12 and am thinking of adding Ginko.