Catfreak we sound alike in many respects. I quit the rebif though, I was allergic to it. The nutrient depletion is a great point and I do know that this must contribute partially to the problem. There was a discussion recently about the neurontin & my sleep issues. Jimmylegs found a few good mentions on this topic. Were you involved in the neurotin post...sorry I can't recall.
Gauging by the way I feel somedays (dragged out as opposed to generally tired) there must be something more to the long term aspects of pill popping. I am increasing my D vitamin and others short term and there is a slight difference. I also wonder how our homones are affected by depletions and if there is a way to pinpoint certain days to "build up to" with nutrients.
Tuckertd: I totally understand about the pain reliever aspect, I have tried working on the pain and it does help to an extent. It's a bit of a vicious circle with fatigue/pain and drugs. Interesting about the LDN and ALCAR.
I would like to pursue the LDN.
Cheerleader: green tea extract and quercetin, interesting supplements. Happy to hear your husband can avoid the "nap". As great as it sounds to so many others, it certainly can be an interuption when it becomes a necessary way of life. I'll do a little search on the items you mention.
Now with fatigue.....there are a few things I've tried just to reserve energy to get through the day. It is a lifestyle change and is really difficult to explain to others why I'm "sitting on the floor". I can ask for help with some things, but I don't want to give up my independence completely.
There are days I don't want to get out of bed and others where I feel satisfied putting away a basket of laundry. Housework is usually a challenge and days where there are outside obligations, the home is on the back burner. I look at everything differently now, it's all about perspective.
It is no longer a sink full of dishes, it becomes a mission. How do I get the dishes clean and in the cupboard expending as little energy as possible?
Sounds silly, but not to people with fatigue and who have a whole day ahead.
I cannot hire a full time maid, I am one of those people who would like to have the house clean before the maid comes!
These are a few things I do to conserve:
-stool for dish washing or counter work (food prep)
-involve others on the days I cook (we all take turns)
-sit down while mopping/vaccuming
-place items in easy to reach places (no more digging)
-buy more canned items than jars (tugging at a lid can be tiring if not impossible)
-remain seated when folding laundry
There are many more things I have changed but can always use ideas.
I think it's a matter of getting away from the "push and pay". We push to get things done and pay physically the next day.
I have read where people don't have enough energy to cook for themselves some days. I have been there and I'm guilty when left alone. I simply won't bother because it's too much work. This sounds insane, but as proud as I am, I admit to it. I have committed to having items on hand that do not require cooking and nibbling on natural foods when these days arise.
There are so many changes we make without realizing it. While finding some kind soul to help is a blessing, there are times we need to fend for ourselves in the healthiest way possible.