how did you get diagnosed?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Hi Lionheart

Postby 71jules » Sun Feb 15, 2009 2:35 am

Hi there, no worries.

Symptoms have been around for quite a while seeing specialists off and on for different things for years.
In November of last year the symptoms started to get worse and after seeing the GP, MS was suspected.

There was no flare on the morning I saw the Neuro.

MRI soon prob early April.

Keep smiling.

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another question

Postby 71jules » Sun Feb 15, 2009 3:42 am

Hi again.

I am curious should I mention this to my Neuro next time?
My hands feel ice cold and numb very ice cold, to touch them on my face though they are not cold and for my children or hubbie as well they are not cold.
This has happened before but not to this severity.


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Postby jimmylegs » Sun Feb 15, 2009 5:25 am

jules the cold hands and feet are part of the crap circulation/vascular issues

read the CCVI thread in general discussion too. (chronic cerebrospinal venous insufficiency)

remember i pm'd you about checking zinc.. here's what i posted on that ccvi thread that is relevant to that

to me your case, which involves all these clearly visible concerns with your blood vessels, seems to be very similar to jeff's (cheer's hubby's) case. zinc is not the only piece of the puzzle, but it's an important aspect to look into!

more on zinc :) ... ticle4.pdf
In this article, John Beattie describes how dietary zinc intake may influence vascular health and disease. He demonstrates that the development of vascular disease is accelerated in marginal zinc defi ciency and investigates a mechanistic basis for this influence, possibly involving vascular smooth muscle structural proteins... ... row=361901
Our data indicate that zinc is vital to vascular endothelial cell integrity, possibly by regulating signaling events to inhibit apoptotic cell death.
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Postby mrhodes40 » Sun Feb 15, 2009 9:01 am

When I was in college in a physiology class I failed the Romberg test--eyes closed feet together--. I was not diagnosed with MS until 10 years later.

I have rheumatoid arthritis too so they blamed everything on that for a time, it took them a while to figure out I had both-2 years actually, before they realized that the exacerbation I had at 30 was not just an arthritis flare with a "psychological" inability to bend my legs.... :lol:

But they did not bother to try neuro tests, once somone did send me to a neuro, I was diagnosed in minutes. He was not at all distracted by the RA, nor was he playng "junior psychologist" :wink:
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thanks for that guys

Postby 71jules » Sun Feb 15, 2009 6:35 pm

Hi and thank you for that, will definityley research that jimmylegs and mrhodes40 that is a bit scary that a diagnosis could be missed for 10 years.
I will not stop at one neuro or two or three until I feel fully satisfied they have cleared every avenue to rule MS out.
I will be working on my B12 and zinc levels cannot hurt whether I have MS or not to be doing that.


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