They gave me prednisone. I just did not know if anyone else has ever taken such a whopper dose orally
? I did it yesterday, 200mg every 2.5 hours for a total of 1000 mg. I took it pretty well, little heartburn, but otherwise it was not too bad. Better than sitting in an infusion clinic at a hospital - yuck. Two more days of prednisone to go...
We will see if I get any improvement. My last Campath dose was 2/27, so it has been a while and I am still out of work due to the 20/400 vision from ON mostly. My work is wondering if I am still planning on working there.... well I hope so I sure need the $$ in todays market especially.
Anyway this whole experience has brought me back to prior state of being pretty down. I try to keep spirits high as this may be a temporary setback that comes before some Campath induced progress (not progression
) . Nonetheless I put a lot of hope into what I saw a a hail mary pass into the endzone at the last minute to keep my ass in the game of life at some reasonable level of existence. For now thst did not work out as I hoped. I guess I am still here so I'll keep fighting through this crap. I am getting weary though. Vertigo still comes on unannounced, balance is whacky at best nad now I wear a patch when / where possible to keep my ON eye from bothering me too much. My stump foot has gotten mostly better though, or I would be - Vertigo Boy, the one eyed, stump foot pirate - in my late 30s no less.
Pity party for me. Not today. I am going to keep fighting this evil disease for now.