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NHE
PostPosted: Fri May 01, 2009 3:34 am 
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NHE
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Loobie
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PostPosted: Fri May 01, 2009 5:05 am 
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udaman

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cheerleader
 Post subject: CCSVI
PostPosted: Fri May 01, 2009 7:11 am 
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WOOT! WOOT!

Thanks, NHE-
One correction...it was my bad. It's actually CCSVI....chronic cerebro spinal venous insufficiency. Sorry all.
See ya on the new thread!
AC

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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peekaboo
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PostPosted: Fri May 01, 2009 7:21 am 
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thank you
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notasperfectasyou
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PostPosted: Fri May 01, 2009 7:22 am 
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Thanks NHE. This is a very good topic. Ken

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skydog
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PostPosted: Mon May 04, 2009 4:44 pm 
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Where do I go to catch up... seems allot has happened on the CCVI side of things here. The last posts were of cheer's Jeff going to Stanford... Lost my sat. connection and still waiting for a service call to get it fixed, so for now I am back via a dial up connection. Please send me in the right direction. Thanks everyone !!! Peace Mark

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cheerleader
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PostPosted: Mon May 04, 2009 4:48 pm 
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skydog wrote:
Where do I go to catch up... seems allot has happened on the CCVI side of things here. The last posts were of cheer's Jeff going to Stanford... Lost my sat. connection and still waiting for a service call to get it fixed, so for now I am back via a dial up connection. Please send me in the right direction. Thanks everyone !!! Peace Mark


Hey Mark...
Missed you, buddy. How's the garden? Jeff's been to Stanford, has bilateral stenosis in his jugulars (a CCSVI diagnosis), and is back to Stanford getting his jugular stent tomorrow 7am. Lots going on-
Here's the new, swank digs
http://www.thisisms.com/forum-40.html

cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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skydog
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PostPosted: Mon May 04, 2009 6:15 pm 
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Great news Cheer !!! I will be awaiting to hear how it goes. Seems like the most logical route for me take. The only thing holding me back at this time are limited funds, and zip for insurance. Might have to put out a tin cup... Looking for any options to get in Jeff's position. Garden is just starting to green up. High winds and heavy rain right now up here. Thanks Mark

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gibbledygook
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PostPosted: Tue May 05, 2009 10:51 am 
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Good luck JEFF! Hope it all goes swimmingly. I would guess that it might take a while for things to change noticeably...

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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