Sleep

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby msmything » Sun May 17, 2009 8:38 am

Sleep is my all time favorite thing to do well....ever.

Loob a Doob, been thinking about you, I've been too broke to get some of your herbal remedy here. I just got 2 paychecks at once, I'm gonna invest in myself, I'm getting so spastic, my shoulders are almost in my ears. I put a business suit on the other day and I couldn't understand why the sleeves were so long..it used to fit.It was my arms that were short.

Anyway to the topic. we all know about having a bedtime, and a bedtime routine..My Doc says that more important than bed time at night is to get up at the same time each morning. That's hard. When I have a day off, I want to sleep in. I'm trying to give it a try though...
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Postby jimmylegs » Sun May 17, 2009 2:58 pm

for those not having success with magnesium, what was your daily intake when you tried it?
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Postby MaggieMae » Mon May 18, 2009 6:45 am

Answer to Jimmylegs regarding vitamins -
The calcium/mag/zinc is a combination and then he takes an additional 50mg of zinc.
He takes 4000IU of D3
The B12 is 250mcg. I had his B12 checked a few years back and it was low. After taking the vitamins, it came back to normal range.
He said he takes most of his vitamins during the morning. I'm lucky that I get him to take them at all. He is tired of "pills", but he has been taking regularly. Naturally, I make up the little pill boxes for him. He takes the MSM in the evening if he starts to have leg spasms. Usually takes about 6 (1000mg each) at a time.

I keep thinking of trying the inclined bed that Andrew suggested.

He has an appt with his neurologist next month. I will take the suggestions with me to see if he would perscribe something.

Thank you for all your suggestions.
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Postby jimmylegs » Mon May 18, 2009 7:59 am

mm, he definitely needs to take some of the magnesium separately and away from the time he takes the d3. i had a similar regimen to your hubby's and i thought i was going to die. the pharmacist tipped me off to the need to get some mag separate from d3, and everything changed for me. i was skeptical but time proved him right.

if the pills bug hubby, you could see if he would go for a bedtime drink of natural calm.

personally i find i can't get enough daily magnesium from natural calm alone - i don't want to have multiple cups per day, and i'm not keen on the flavour when it's strong enough to deliver a few hundred milligrams.

i was out of my 250mg capsules for a while and i was really going downhill in spite of having a cup of mag tea nearly every evening.

i finally bought a new bottle of mag capsules when i felt my difficulties breathing return. that was a few days ago. i took 500mg per day for the last few days, and i have yet to 'loosen up' inside so i definitely needed it.
i can breathe deeply again too. what a relief!
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Postby MaggieMae » Fri May 22, 2009 5:47 am

Wanted to Tell Jimmylegs that I got the 500mg of Magnessium for my husband. He took first pill on Wednesday night. He slept 6 hours straight, which is remarkable for him. Last night he slept most of the night, only getting up two times. I know that two nights isn't enough to say "this works", but I will write again in a couple of weeks and let you know how he is doing. Thanks.
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Postby jimmylegs » Fri May 22, 2009 7:30 am

wow that's GREAT NEWS mm!! when it first worked for me i really doubted it too, but hopefully the effect will last for your hubby too. thanks for checking back in,
JL
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Spasticity and Mag

Postby yachmene » Wed Jul 01, 2009 7:45 pm

I was reading your post and saw that you take 500 mg of mag a night for your spasticity. Is that enough? I am new to this forum but not to MS. I have tried Baclofen and almost died from alergic reactions and was on zanaflex which helped but knocks me out. I am so spastic that it does not just occur at night anymore. It can happen while I am driving down the road and such. Trying to find something that I can take during the day to avoid the worn out feeling. I hate meds because I seem to always be part of that 2% who react adversely.
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Sleep cure

Postby msmything » Thu Jul 02, 2009 10:41 am

For all those deprived of sleep, I tried a sample pack of Rozerem, you know the commercials with Abe Lincoln and some sort of woodchuck looking thing? It works for me like a charm.
It is a melatonin re-uptake inhibitor, so it allows your body to produce it's own melatonin, but discourages your body from reabsorbing it so rapidly.

I LOVE IT. I wake refreshed and as clear headed as I get.
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Postby Bubba » Thu Mar 04, 2010 9:01 pm

Loobie wrote:If you're not opposed, MJ works very well for me and if you don't abuse it and use it only at night, you never need anymore than a couple of hits.



I can only wish Lew! Since my original post back in May 09', my insomnia has worsedned and I believe I have built up a tolerance to my xanax. My neuro is trying several different pills for me but so far, all they have done is the opposite; wired me up even more. So lately I am doing 1 oxycodone (for the arm pain), 3 benadryl, a xanax, and copious amounts of beer. Temporarily, thats working, half azz....
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby Loobie » Fri Mar 05, 2010 11:10 am

Bubs,

I totally understand why the MJ if off the table for you. Have you tried that Rozeram or Lunesta? I had pretty good luck with the lunesta, but I never tried rozeram, but it looks like MSMYthing is lovin' it.

Are you having problems GETTING to sleep or STAYING asleep? or both?
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Postby Bubba » Fri Mar 05, 2010 6:19 pm

4.5 more years my friend, and it wont be a problem for me!!! :D
I haven't tried either of those two, but it seems I have tried everything else. My problem is getting to sleep. Once asleep, everything is kewl. My mind just wonders and spins when I lay down. I think of and about everything, the more I think, the harder it is for me to fall asleep...Thus the large quantities of beer.
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby msmything » Mon Mar 08, 2010 8:28 pm

I'm done with the woodchuck stuff..stopped working....so, what I'm doing now is kinda against the rules. I'm cutting Ambien in half. It's supposed to be time release, and taken whole. But I too Bubba have issues falling asleep, so the insides of it get right on the job. I fall asleep and pretty well stay there. I don't take 'em every night, so 30 of them will get me at least 70 days or so.
I awaken pretty clear headed, again, as clear as it gets..
I do think it's an experimental thing, finding what works for ya. I definately have some pain things and spasms and such, but it's mostly the churning in my head that keeps me from falling into the land of nod. So, whomping myself on the head with 'both layers' of Ambien does it for me.

I did move up into the world of major narcotics. I wear a fentanyl patch now, 25 mcg/hr. I love it. For reasons unknown I almost always have a crippling headache, it was actually what drove me to the ER onenight at work (in a hospital) that lead to my DX of MS. It went awya briefly after 2 occipital nerve blocks, but cam eback with ferocity.

Anyway the pain specialist was gonna move me to ocycodone or contin or something, and I asked hin if I could get away from the pills and try a patch. The pills are too easy to lose control with i feel. the patch goes on 1 time every 3 days. i wake up every day completely pain free. WOW, it's unbelievable. I don't feel high, no ups and downs throughout the day. Just no pain.
Sorry about the spelling, I'm overworked today..
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
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Re: Sleep

Postby lyndacarol » Tue Nov 01, 2011 6:42 pm

I wonder if this article explains msmything's experience:

http://www.abc.net.au/science/articles/ ... htm?mid=51

(Taken from the CCSVI forum: post179761.html#p179761)

msmything posted in General Discussion on May 17, 2009:
I'm getting so spastic, my shoulders are almost in my ears. I put a business suit on the other day and I couldn't understand why the sleeves were so long..it used to fit.It was my arms that were short.
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