Ohio State's MS Center

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Re: Ohio State's MS Center

Postby euphoniaa » Fri Jul 03, 2009 12:11 pm

patientx wrote:Anyone have any experience there?


Hi patient,

Sorry my reply is a bit late, but I haven't been spending much time on forums lately.

Yes, I go to the OSU MS Clinic and my neuro is great! Of course, that's in comparison to my 2 previous short-term, obnoxious & abusive non-MS ones, but still...she's pretty cool and well worth the 2 hour drive. When I started with her a few months after my dx 6 years ago, I believe there were only 2 neuros at the OSU MS clinic. They now have a brand new facility staffed with lotsa neuros and an entire parking lot of handicap spaces. :)

I have no idea, however, if that clinic has a specific treatment philosophy and, even if they do, I still think a patient/neuro relationship is very individual no matter where they're from. Any clinic of this size should be offering excellent, professional treatment. Although mine always states that she's "supposed" to be offering me drugs and always asks, she's also completely comfortable with my decision to avoid them all - especially since I'm doing so well without them. She immediately wrote up orders for an MRI and later for PT when I asked her about them, though. She chats, smiles and even laughs at my jokes.

I've personally had some of the best and the worst doctors since my adventure started - one of them even turned out to be BOTH the best and the worst doctor I've ever had (long story omitted).

Another interesting note - I was given an almost 100% dx of MS & HNPP the day after my first MRI and before I even saw a neuro. Then I was sent for confirmation to the only local neuro, Dr. Mean-Nasty-Scare-the-Crap-Out-of-You, and then on to OSU, where I was treated (well, not really "treated") by a non-MS neuro, Dr. Prescribe-Bitch-and-Threaten, until she fired me (even longer story here) and sent me to the MS Clinic.

Good luck in finding the perfect neuro. I'll PM you my current doctor's name if you want.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Postby patientx » Fri Jul 03, 2009 6:20 pm

Euphoniaa:

Thanks for the reply. Better late than never.

I appreciate the info about OSU. I have to admit my goal was to find a place to get into one of the more cutting edge clinical trials. I am on one of the CRABs right now (actually in a study looking at a combination of Copaxone and interferon), but I just don't think they offer much. So, right now, I think the best way to aggressively treat MS (which is what I want to do) is to enter a new drug study. But, after calling around, the MS centers usually want you to be nearby. So, unless I move, I think OSU would be out for me.

I'll probably stay put for now, try to find something more local to me. But I'm glad to hear good things about OSU, because I won't rule it out for the future.
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