This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed May 22, 2013 8:47 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 7 posts ] 
Author Message
 Post subject: new, scared and numb...
PostPosted: Mon Jun 29, 2009 5:45 am 
Offline
Family Elder
User avatar

Joined: Sat Jun 27, 2009 3:00 pm
Posts: 100
Location: Ontario
Hi everyone.
I was just diagnosed with MS. I'm 24, married, and have a 16 month old daughter. My entire torso pretty much and left arm are stone numb. I finished 3 days of IV steroids on friday but am on no other meds. I'm still in shock from the whole situation and am praying for the feeling to come back in my body so that I can feel again, and go back to work, care for my daughter, etc... I guess I'm looking for others who have had this numbness and it went away for hope that mine will too. Can anyone give me some ray of hope? I'm trying to be optimistic but I'm also so scared...


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 29, 2009 7:18 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
Hi, It will go. I have found with me it is quite severe then eases off.
If I were you I would start taking steps to help your body heal.
Take omega 3 oils (fish oils/flaxseed) and EPO (omega 6) take B12 and vitamin D, C and inositol. I have found these have helped me so much. I also don't eat wheat/dairy and keep my consumption of red meat to a minimum. Read about some of the other theories on this board such as CCSVI and Revimmune, Campath, LDN and the natural sections.

There is hope so don't feel that you won't come out of this current flair, things should improve

L x


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jun 29, 2009 7:34 am 
Offline
Family Elder
User avatar

Joined: Sun Feb 08, 2009 4:00 pm
Posts: 627
Location: Arizona
LR offers good advice, we also have a "resident" supplement expert you may want to PM Jimmylegs....


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jul 13, 2009 7:12 pm 
Offline
Volunteer Moderator

Joined: Sat Mar 11, 2006 4:00 pm
Posts: 7617
hi just found this - and just to throw in my two cents, when taking d3 do also take a calcium magnesium and zinc blend - ideally 1200 ca, 600 mg, and 50 zn.
add a good b50 complex to work with the b12.
a natural e8 complex, 400IU per day may have some benefit. or you can eat a lot of raw sunflower seeds! 1/4 to 1/2 c per day.
and finally a good quality multivitamin/multimineral for a foundation to all the rest.

for more info see links in the signature below

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 08, 2009 7:21 am 
Offline
Getting to Know You...
User avatar

Joined: Fri Aug 07, 2009 3:00 pm
Posts: 18
My husband, who has MS, has had numbness/tingling like that. It was a severe attack like that that led him to be diagnosed with MS in the first place. His feet "fell asleep." And then it traveled up his body to about mid torso, and stayed that way. Constant needles day and night, and he couldn't feel anything else besides the pins and needles. He was panicked and freaked out. He didn't feel himself emotionally/intellectually, either.

It got better, but it was pretty slow. After about 6 months, the numbness was back down to just his feet. And it took about a year for the numbness to go away completely. It still comes back now and then, especially when he's feeling stress. But it hasn't come back as severely as that first time.

I hope you're feeling better already, but even if you're not...there is hope, lots of hope.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 08, 2009 8:16 am 
Offline
Family Elder
User avatar

Joined: Wed Jan 14, 2009 4:00 pm
Posts: 357
Location: Connecticut
Hi hlm, You'll find everyone's stories are different, yet so much the same. My diagnosis came totally out of the blue 3+ years ago. I woke up one day with my legs feeling "funny." Less than a week later, I could barely walk. I had the three days of IV steroids, and for me they had an immediate impact. By the week after the steroids were done, I was able to walk again without using my husband's golf clubs as canes. I was slow and unsteady, and I still am to some degree, but it took a month or so to get back to what is my new normal (tired, pins & needles, spasticity to name a few), but it's tolerable. Knock on wood, I haven't had a noticeable relapse since. Things should settle down and you'll find a way to deal with whatever's on your plate. We all have, and we all understand what you're going through now. It's a scary time, but truly not without hope.
Here's to a quick end to your current symptons. You found a really good place at TIMS for help and resources.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Aug 11, 2009 12:00 pm 
Offline
Family Elder
User avatar

Joined: Tue Mar 06, 2007 4:00 pm
Posts: 161
Location: Toronto, Canada
hlm, we talked previously about pregnancy, but I didn't see this post.

My first 'official' symptom of MS was numbness on one side. I thought I had pinched a nerve, but then it started to spread and wouldn't go away.

I did not take any steroids or go on treatment as I wasn't diagnosed until a couple of months after.

The numbness lasted about 6 weeks for me. Actually, it probably really lasted closer to 6 months but I adapted to it so much that I didn't even realize it was there, after a while.

As far as MS symptoms go, I think this is by far the best one to have.
I was quite disappointed that my next relapses presented as something else - it would have been nice to limit the disease to a bit of numbness now and then!

It is scary when it's new though, and I hope you are back to feeling yourself again.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 7 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Numb patch

Guest

10

1242

Wed Dec 31, 1969 5:00 pm

Guest View the latest post

There are no new unread posts for this topic. Numb Tongue

Alicia

1

976

Tue Aug 30, 2011 8:10 pm

Luongo View the latest post

There are no new unread posts for this topic. If your hands are numb, you might want to try this...

Anonymoose

12

865

Wed Feb 13, 2013 2:02 pm

Anonymoose View the latest post

There are no new unread posts for this topic. random numb patch?

Meegs

4

1142

Mon Apr 27, 2009 12:03 pm

Wonderfulworld View the latest post

There are no new unread posts for this topic. How do you deal with numb feet

joeymia

8

1139

Wed Jun 30, 2010 11:40 am

Loobie View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: