In the Army and New to MS

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In the Army and New to MS

Postby Laurennicholson » Tue Jul 21, 2009 8:26 am

Wow. Did not expect this at all after 5 years in. I had a migranal stroke, which lead to my whole left side numb and also messed up my right side as well (Couldn't write my name !!)) I was like that for a week. I kept going back to the doctors and they kept making light of my situation. I finally got in to see a neurologist, and they did several MRI's with and without contrast and 3 LPs. (They had trouble hitting the mark which led to me being stuck 6 times and needing a blood patch to stop the headaches.) The Neuro finally said, there is no way you don't have it. She did every test possible on me to try to disapprove the results, but to no avail.
I am calming down with it now. But I do find myself depressed a lot even when I don't want to be. My husband just left for Afghanistan for 6 months, which leaves me with the two kids, full time college classes, my army job and my MS. I don't have any family nearby to help and its down right frustrating.
Are there any other soldiers on this site who has experienced this through their enlistment and what happened? Did you get Med boarded or stay in dealing with it. I could use some advice and some comfort. I hope that doesn't sound needy, but I am nearly at the end of my rope.
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Postby jimmylegs » Tue Jul 21, 2009 9:31 am

welcome lauren, sounds like a rough go, but you will be able to find some other military folks here at TIMS that you can commiserate with.

my thing for handling MS is nutrition, so if that approach interests you at all, let me know.

take care,
jimmylegs
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Postby Laurennicholson » Tue Jul 21, 2009 9:37 am

I will take any and all information that I can. I know I will have to make a lot of lifestyle changes. Thank you for letting me in on this.
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Postby LoveActually » Tue Jul 21, 2009 1:33 pm

Hi Lauren,

Wish I was at Bragg to help you out. Been there done that, and now we're in Cali. Anyway, my husband is in the Army and I actually work from home and care for our 2 children. I am still going through the process of figuring out what my diagnosis is exactly, but after much research and a few opinions from other doctor's who didn't want to deliver the definite MS diagnosis, I am here.

For me, ThisIsMS is the heart of my research. There is a ton of information here and you could spend days and days reading over it all. I have. The information will get you excited and drive you banana's all at the same time. I can't offer much advice as I am very new to this disease, or in my case possibly having the disease. But I just wanted you to know that I was here and if you ever needed to talk just let me know. :D

Almost everyone in my husband's unit knows what's going on with me. If you have some questions that you're afraid to ask your commander or whomever, I can ask my husband or have him talk to someone in his unit and get their opinion. For me, things are different obviously because I am just the spouse and not active duty.

All the best,

Sarah
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Postby Bubba » Tue Jul 21, 2009 1:51 pm

I am not in the Army, but in a similar situation. My symptoms havent been bad enought to keep me from working, although difficult at times. I just push through, and do what it takes, sometimes I have to dig real deep for energy. I am a cop and work for the government. I FEAR every year when we have to do our physical fitness and shooting. As Lew would say, "Take a deep breath", and youll learn to deal and work with it. Your husband being gone really doesnt help matters at all! Right now, you are overwhelmed with worry and not knowing what the future holds. I am personally trying to keep work from finding out. I am to close to retirement. I know its easier said than done, but remember, Worry is only intrest paid on something that hasnt happend...
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Postby Laurennicholson » Wed Jul 22, 2009 2:39 pm

Thanks for all the advice and words of wisdom. I sat down with my First Sergeant yesterday and he reassured me in a lot of things. Living in Fayetteville makes it hard to get to Chapel Hill, but my 1SG wants me to go there and get the best treatment possible if that means he drives me himself. He is very supportive in all my situations with my 6 month old son's health as well as my own. I feel better now about all the support I can get. I will definitely be on this site often to get more and more information and I really enjoy reading everyone's stories and opinions on all subjects matters for MS. Thank you so much!
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Postby Nick » Thu Jul 23, 2009 2:07 am

Hi Lauren

I often post a note such as this to folks who are either newly diagnosed with MS or are probable with or suspicious of the condition.

An insidious aspect of MS can be that it is not formerly diagnosed until the neurological damage becomes so pronounced there is no other reasonable explanation. I would speculate that this scenario of waiting for more symptoms to arise has characterized many of us with MS. Unfortunately this is not in a patient’s best interest yet it is a fact of the insurance driven medical world we live in.

Obviously it is crucial to halt or slow any further neurological progression as much as possible before serious nerve damage occurs. Aside from or in addition to drug therapy, there are choices to address your MS that are inexpensive, safe and easily incorporated. Moreover the official MS medical community is ever so slowly recognizing that MS can easily be prevented with safe, simple and low cost measures.

As controversial as the last statement seams, vitamin D has been recognized to positively regulate the immune system from attacking self and that levels of vitamin D intake, that were not long ago thought to be toxic, are now seen as harmless. The key remaining relationship to be recognized is at what intake of vitamin D results in optimal protection from MS. When this latest information, summarized here, is combined with all the previous work it essentially leaves very little doubt that MS is a long latency vitamin D deficiency disease. Once this is accepted then it becomes obvious that adequate vitamin D intake from birth onward can protect a person from MS regardless of genetic susceptibility or exposure to other environmental factors involved in MS. Dietary proteins have also been demonstrated as having the ability to confuse the immune system into attacking self by a method termed molecular mimicry.

It appears as if you are in the relatively early stages of your disease process (at least as far as symptoms go and at this juncture, it appears as if your symptoms are a consequence of nerve inflammation rather than damage to the nerve itself). This is positive as halting the disease process can yield a full recovery when inflammation decreases as opposed to the state of nerve damage which will persist irrespective of stopping the disease mechanisms. The same elements that induce prevention of MS will also have an effect on active disease progression.

Roger MacDougall is one such individual who induced remission and then enjoyed the benefit of his body repairing itself, from what was most likely nerve inflammation, to full recovery despite his one time wheelchair status.

Because of the success I have attained in controlling my MS I have become a participant in the efforts of DIRECT-MS (Diet REsearch into the Cause and Treatment of Multiple Sclerosis). Since our inception in 1997,one of our goals was to sponsor a clinical trial which will put to test the theory of causal dietary proteins, essential fatty acid deficiency and a deficiency in protective vitamin D3. As the research category at our site details, we initiated a clinical trial in Scotland, applying diet revision for intervention of early stage MS, that is completed and we had very positive results.

We have also finished the vitamin D trial in Toronto which was a Dose/Safety Study of Vitamin D for Persons with Multiple Sclerosis. It was conducted to determine the optimal dosage of vitamin D to use for future clinical research to test the effectiveness of vitamin D for preventing and treating MS. I’m happy to report that even at ridiculously high daily dosages as 40,000 IU/d, no adverse effects were created. We advocate that to prevent and actively manage MS a daily dose of 6,000 IU/d is needed. If you are avoiding dairy(Best Bet Diet) you must also supplement with 1200mg of calcium and 600-1200mg magnesium.

I hope to have the abstracts for both of our completed trials on the website soon.

As a quick self analysis, if you regularly consume one of more of gluten, dairy, legumes, eggs or yeast and do not get 4,000 IU/day of vitamin D3 or its equivalent (this intake equates to a minimum of an internal concentration of 100 nmol/L), then you will find the information at our site of great relevance.

The body of evidence and my own experience dictates that prevention, of not only tissue damage, but also the entrenchment of autoimmunity against self, is the best manner to deal with an autoimmune disease. Even though you have might have active MS, the absence of serious nerve damage bodes well for an effective response to this regimen. Perhaps only such simple measures as getting enough vitamin D3 and omega 3 fatty acids with minimal saturated fat intake will be enough do it for you.

Good fortunes

Cheers
Nick


DIRECT-MS material

Booklets

Direct-MS produces information booklets on various aspects of multiple sclerosis. These booklets are listed below and a PDF of each one can be opened and downloaded by clicking on the title. Alternatively we can mail you a hard copy of any of the booklets. Just writeor [email="info@DIRECT-MS.org"]email[/email]us and let us know which ones you would like sent to you. Don’t forget to include your mailing address. There is no charge for this service.

Booklet #1 Take Control of Multiple Sclerosis
This booklet discusses the main causal factors of MS and, with this information as a guide, it lays out our recommendations for nutritional strategies to help control MS.

Booklet #2 Protect Your Family from Multiple Sclerosis
This booklet emphasizes the high risk for contracting MS of first-degree relatives of persons with MS. It discusses the causal factors of MS with special emphasis on vitamin D deficiency as a primary cause. Finally it demonstrates that adequate vitamin D can likely prevent MS in most cases and provides a recommended supplementation regime.

Booklet # 3Multiple Sclerosis: The Alberta Disadvantage
This booklet demonstrates that the province of Alberta, the home of DIRECT-MS, has by far the highest rates of MS in the world: Prevalence 340/1000,000; Incidence 20/100,000.
Data and arguments are provided to support the argument that the main reason for the “MS Epidemic” is that all the main causal factors are present in Alberta, with low vitamin D supply being especially problematic.

Presentations

We have found that a Voiced PowerPoint presentation (‘Webcast’) is an effective way to communicate the science and the recommendations for nutritional strategies for controlling MS and preventing it in the first place.

Our latest presentation is Potential Therapeutic Characteristics of Pre-agricultural Diets in the Prevention and Treatment of Multiple Sclerosis. The presentation is narrated by Dr Loren Cordain of the Colorado State University. Dr Cordain is a world renowned expert on health and the original human diet and is the author of the “Paleo Diet” and “The Paleo Diet for Athletes”. He explains how returning to a diet based on lean meats, seafood, fruits and vegetables can prevent and help treat MS and other diseases such as Rheumatoid Arthritis and Crohn’s Disease.

Our third webcast is Prospects for Vitamin D Nutrition. The discussion is narrated by Reinhold Vieth of the departments of Pathology and Laboratory Medicine, Mount Sinai Hospital and Laboratory Medicine and Pathobiology, University of Toronto.
Dr. Vieth addresses the topics of:
Vitamin D and Human Evolution
Clinical relevance of higher vitamin D intakes
Toxicology of Vitamin D

Our second webcast is entitled Preventing Multiple Sclerosis and is the second in a series of web casts regarding nutrition and Multiple Sclerosis. The focus of the Prevention presentation is how MS can be easily, safely and inexpensively prevented by focusing on protective factors. This is a must see for those people with MS who have children.

Our first webcast, Nutritional Strategies for Controlling Multiple Sclerosis, addresses diet and MS. It presents the probable causes of MS and how to effectively control those elements. A review of the protective factors and how to incorporate them into your lifestyle are also covered.
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Postby Laurennicholson » Thu Jul 23, 2009 3:13 am

That was extremely informative and I will take all those facts into thought. I am not very smart when it comes to this kind of stuff but I will bring it up to my neurologist and see what he thinks. This has definitely been a huge help! Thank you!
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Postby jimmylegs » Thu Jul 23, 2009 5:28 am

and not just vit d, LN!
here are some links, and i also have a regimen thread you may want to consider browsing.
cheers!
JL
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