gainsbourg wrote:What interests me about CIDP is that it demonstrates that demyelination/ongoing nerve damage can occur on EITHER side of the blood brain barrier. Understanding this illness may give us more clues about MS.
Hi Tara, and I wish you well with your dx & treatment! I did think I should make a comment to you & gainsbourg about my own situation. I've been dx'd with both MS and a hereditary peripheral neuropathy, HNPP (my dad's had the genetic testing for it). Here's some info:
http://ghr.nlm.nih.gov/ghr/disease/here ... repalsies/
So...I've been told I have 2 degenerative, demyelinating diseases at once and a missing myelin gene. Although the 2 conditions aren't related and HNPP is rare (probably underdiagnosed), I wish someone would do a study on my family. My dad and a cousin have HNPP only, another cousin has MS only, and I'm told I have both. Maybe I'm the missing link!
My MS is one of the most definite my neuros had ever seen, so that's not an issue. And another interesting note - the myelin in the CNS and the PNS come from two different types of cells. I'm always suggesting these hereditary conditions (see the website) as possible diagnoses, but they're never listed as MS mimics and few docs even seem to know much about them.
I'm sitting here typing with currently numb fingertips, entirely
due to taking yoga with HNPP. It will go away soon.
That's how I know it's not the MS.