Your EDSS?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

What is your EDSS?

zero
3
12%
1-1.5
7
28%
2-4.5
7
28%
4.5-6.5
4
16%
6.5-7.5
2
8%
7.5-8.5
2
8%
9-9.5
0
No votes
 
Total votes : 25

Your EDSS?

Postby AMO » Fri Sep 18, 2009 9:14 pm

Hi Everyone :D I have been comparing my EDSS with other fellow MS'ers. Can you share your EDSS or a loved one's EDSS with us? :D
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Postby euphoniaa » Sat Sep 19, 2009 2:19 am

It might help if everyone knows what an EDSS is. :) Here's a link to the Kurtzke Expanded Disability Status Scale, along with a description of how it's used and its limitations, as well as links to other scales.

http://www.mult-sclerosis.org/expandedd ... scale.html

Personally, none of my doctors has ever mentioned the term EDSS, although it's pretty normal for humans to want to quantify everything and it's kinda interesting to try to figure one's rating.

One of the issues I have with MS scales like this and the MSQOL test (MS Quality of Life) is that there's no way to separate the MS issues from one's other medical/age related problems. I had a research group give me that MSQOL test a while back when I had a broken toe. Totally skewed the results. :)

Good health to all!
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Postby AMO » Sat Sep 19, 2009 10:17 am

Thanks Susan for all the good information ;) and thank you for passing by
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