Unfortunately, I'm Back
- LoveActually
- Family Elder
- Posts: 211
- Joined: Thu May 28, 2009 2:00 pm
- Location: Southern California
- Contact:
- LoveActually
- Family Elder
- Posts: 211
- Joined: Thu May 28, 2009 2:00 pm
- Location: Southern California
- Contact:
Just an update...
Had my EEG and VEP today. Still picking the citrus glue crap out of my hair. Everything went fine but I won't know the results until next Thursday, the 29th, when I see my neuro.
I tried to request a copy of my Radiologist Report but they require you to sign a release form and mail/email/fax it and then they have 14 days to respond. I'm going to send it off tomorrow just so I can have it but I'm pretty sure I won't get it before my neuro appt.
I called my neuro's office today to inform them that all my tests have been completed. This way, when I go in on the 29th they'll have all my results in hand and can give me some solid answers. Hopefully.
Had my EEG and VEP today. Still picking the citrus glue crap out of my hair. Everything went fine but I won't know the results until next Thursday, the 29th, when I see my neuro.
I tried to request a copy of my Radiologist Report but they require you to sign a release form and mail/email/fax it and then they have 14 days to respond. I'm going to send it off tomorrow just so I can have it but I'm pretty sure I won't get it before my neuro appt.
I called my neuro's office today to inform them that all my tests have been completed. This way, when I go in on the 29th they'll have all my results in hand and can give me some solid answers. Hopefully.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
- LoveActually
- Family Elder
- Posts: 211
- Joined: Thu May 28, 2009 2:00 pm
- Location: Southern California
- Contact:
- LoveActually
- Family Elder
- Posts: 211
- Joined: Thu May 28, 2009 2:00 pm
- Location: Southern California
- Contact:
Daughter who was recently diagnosed with MS
Hello to All....I have never done this before, so I hope I am appropriate and am doing this correctly.
My 29 year old daughter (who happens to be a new mother with a 11/2 year old beautiful son) was disagnosed with MS two months ago. It was such a shock! No MS in the family and she has always been a healthy, active person. We spent the first several weeks in disbelief...Maybe the doctor made a mistake.... How did she get this....These type of thoughts.
I want each and every one one of you to know that I admire you and have a great respect for you and your bravery, courage, and strength. Just in the short two months in which my daughter has been diagnosed, I have seen what a monster this disease is.
We are looking into stem cell therapy as a possible solution. Please know that I pray for all MS patients all of the time. You are all in my thoughts throughout the day with my prayers. I also pray for the doctors, scientists, and researchers that they do not give up looking for a cure and that they are led in the right directions.
My daughter has a great attitude, a husband and family that love her, and she wants to beat this. I will share with you all that we find which proves beneficial.
Stay strong; you are all beautiful.
My 29 year old daughter (who happens to be a new mother with a 11/2 year old beautiful son) was disagnosed with MS two months ago. It was such a shock! No MS in the family and she has always been a healthy, active person. We spent the first several weeks in disbelief...Maybe the doctor made a mistake.... How did she get this....These type of thoughts.
I want each and every one one of you to know that I admire you and have a great respect for you and your bravery, courage, and strength. Just in the short two months in which my daughter has been diagnosed, I have seen what a monster this disease is.
We are looking into stem cell therapy as a possible solution. Please know that I pray for all MS patients all of the time. You are all in my thoughts throughout the day with my prayers. I also pray for the doctors, scientists, and researchers that they do not give up looking for a cure and that they are led in the right directions.
My daughter has a great attitude, a husband and family that love her, and she wants to beat this. I will share with you all that we find which proves beneficial.
Stay strong; you are all beautiful.
- lyndacarol
- Family Elder
- Posts: 3394
- Joined: Thu Dec 22, 2005 3:00 pm
- Contact:
Begonia -- Welcome to This Is MS. We understand the turmoil of your daughters MS diagnosis. We appreciate your thoughts and prayers and kind wishes for us -- we will take help from every source.
I encourage everyone with a new connection to this disease to read, to study, to educate themselves as much as possible about it.
It is well known that women frequently have an MS flareup a few months after giving birth so I was not surprised when you said,
A proven cause has not yet been found; in my opinion, there is no effective treatment either. Some people have found diet (especially low-carb diet) and exercise to be the most helpful
All the best with this challenge.
I encourage everyone with a new connection to this disease to read, to study, to educate themselves as much as possible about it.
It is well known that women frequently have an MS flareup a few months after giving birth so I was not surprised when you said,
MS symptoms seem to actually improve DURING a pregnancy.My 29 year old daughter (who happens to be a new mother with a 11/2 year old beautiful son) was disagnosed with MS two months ago.
A proven cause has not yet been found; in my opinion, there is no effective treatment either. Some people have found diet (especially low-carb diet) and exercise to be the most helpful
All the best with this challenge.
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