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Postby jimmylegs » Mon Oct 19, 2009 4:56 pm

cool so those red things are your lateral ventricles. at the risk of stating the obvious, anterior is the front - as opposed to posterior ;)
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Postby LoveActually » Mon Oct 19, 2009 8:25 pm

LOL! Got it. That's pretty cool, may have to borrow that image. :)
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby LoveActually » Wed Oct 21, 2009 8:39 pm

Just an update...

Had my EEG and VEP today. Still picking the citrus glue crap out of my hair. Everything went fine but I won't know the results until next Thursday, the 29th, when I see my neuro.

I tried to request a copy of my Radiologist Report but they require you to sign a release form and mail/email/fax it and then they have 14 days to respond. I'm going to send it off tomorrow just so I can have it but I'm pretty sure I won't get it before my neuro appt.

I called my neuro's office today to inform them that all my tests have been completed. This way, when I go in on the 29th they'll have all my results in hand and can give me some solid answers. Hopefully.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby MrsGeorge » Thu Oct 22, 2009 3:18 am

Hopefully you will definitely get some ansers now. That glue crap is unreal - I had epilepsy as a kid and was forever having EEG's. Makes you look like you have rotten dandruff!
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Postby LoveActually » Thu Oct 22, 2009 1:01 pm

LOL @ rotten dandruff. You're right about that.
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Postby LoveActually » Sun Oct 25, 2009 8:20 pm

Give you something to think about...

http://tinyurl.com/yll3lna
October 29, 2009 - Dx with RRMS
June 22, 2010 - Dx's changed to Devic's (NMO)
January 4, 2011 - Dx w/Syringomyelia T4-T9, Migraines, and Possible MS (again - long story)
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Daughter who was recently diagnosed with MS

Postby Begonia » Tue Oct 27, 2009 5:49 pm

Hello to All....I have never done this before, so I hope I am appropriate and am doing this correctly.

My 29 year old daughter (who happens to be a new mother with a 11/2 year old beautiful son) was disagnosed with MS two months ago. It was such a shock! No MS in the family and she has always been a healthy, active person. We spent the first several weeks in disbelief...Maybe the doctor made a mistake.... How did she get this....These type of thoughts.

I want each and every one one of you to know that I admire you and have a great respect for you and your bravery, courage, and strength. Just in the short two months in which my daughter has been diagnosed, I have seen what a monster this disease is.

We are looking into stem cell therapy as a possible solution. Please know that I pray for all MS patients all of the time. You are all in my thoughts throughout the day with my prayers. I also pray for the doctors, scientists, and researchers that they do not give up looking for a cure and that they are led in the right directions.

My daughter has a great attitude, a husband and family that love her, and she wants to beat this. I will share with you all that we find which proves beneficial.

Stay strong; you are all beautiful.
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Postby lyndacarol » Tue Oct 27, 2009 6:41 pm

Begonia -- Welcome to This Is MS. We understand the turmoil of your daughters MS diagnosis. We appreciate your thoughts and prayers and kind wishes for us -- we will take help from every source.

I encourage everyone with a new connection to this disease to read, to study, to educate themselves as much as possible about it.

It is well known that women frequently have an MS flareup a few months after giving birth so I was not surprised when you said,
My 29 year old daughter (who happens to be a new mother with a 11/2 year old beautiful son) was disagnosed with MS two months ago.


MS symptoms seem to actually improve DURING a pregnancy.

A proven cause has not yet been found; in my opinion, there is no effective treatment either. Some people have found diet (especially low-carb diet) and exercise to be the most helpful

All the best with this challenge.
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