If I have PPMS

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Postby Just_Me » Tue Nov 24, 2009 9:09 pm

Lovely. To my question "what type of MS do I have?" he replied "most likely Promary Progressive MS".

This keeps getting better and better. :cry:
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Postby Frank » Wed Nov 25, 2009 9:12 am

I did the the ABX regime for one year, my liver did never show any problems - buts its certaily true that has to be careful about side-effects, especially when long term therapy is intended.
But Inf and Cop do also have to be taken long term and also have side-effects.
I did know that the "30%" applies to relapse rate, not improvement.

As you wrote before you do not think that you did ever experience a relapse, what is the benefit you could hope for with Inf-b or Cop?

ABX, LDN and supplement arent a miracle cure, but I do really think its worth a try when looking at the alternatives.

In you case who would pay for the Inf / Cop? Health Insurance? Because non of them is approved for PPMS.

Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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Postby Just_Me » Wed Nov 25, 2009 9:40 am

Insurance is paying for Copax. Its possible the doctor did not put PPMS on the info.

I'm assuming he thinks Copax will slow down the progression.

I'm gonna start a new thread about abx.
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