Dear all,
The NMSS review of research in 2004 concluded that:
'These [including the approval of Tysabri] and other leaps forward have made 2004 a momentous year in the fight against MS'.
3 months later - not so momentous after all.
The researchers / drugs companies / national societies build us up to knock us down.
What's next:
Aimspro results due mid year. If effective it will be a few years before approval / use.
Campath - results not due until 2006. Again, a few years before approval / use (if effective).
There are a number of oral treatments in the pipeline, but unlikely until 2008 at the earliest.
In other words - more uncertainty and delay. We've been let down again.
There are 160 trials currently underway - but it's depressing when one knocks out the combinations of existing treatments given what might have happened with Tysabri.
No apologise for the pessimistic rant, but I think we're entitled to it now and again.
Keep the faith - but it does get harder when it seems that for every one step forward we take two steps back.
Bromley
Rant time
Hi, bromley!
Yes, I totally agree (re ranting and raving). As you know, I can be a real pro at that myself!
Right now, I don't know what to tell ya. That's why I was so frustrated a while back (when I vented on poor Wesley). (Sorry, Wesley.......it wasn't "you" I was upset with or about.) Oh, and I did have to go back and delete some things I said about "myself", because I divulged way too much information (that might not be too good for my "health and safety".
Anyway, maybe when we get a chance, we'll have to take another look to see if there is another positive way to look at all this. Right now it's hard, though. I'm totally with you there!
Deb
Yes, I totally agree (re ranting and raving). As you know, I can be a real pro at that myself!

Right now, I don't know what to tell ya. That's why I was so frustrated a while back (when I vented on poor Wesley). (Sorry, Wesley.......it wasn't "you" I was upset with or about.) Oh, and I did have to go back and delete some things I said about "myself", because I divulged way too much information (that might not be too good for my "health and safety".

Anyway, maybe when we get a chance, we'll have to take another look to see if there is another positive way to look at all this. Right now it's hard, though. I'm totally with you there!
Deb