This Is MS Multiple Sclerosis Community: Knowledge & Support

[bromley]

Dear all,

The NMSS review of research in 2004 concluded that:

'These [including the approval of Tysabri] and other leaps forward have made 2004 a momentous year in the fight against MS'.

3 months later - not so momentous after all.


The researchers / drugs companies / national societies build us up to knock us down.

What's next:

Aimspro results due mid year. If effective it will be a few years before approval / use.

Campath - results not due until 2006. Again, a few years before approval / use (if effective).

There are a number of oral treatments in the pipeline, but unlikely until 2008 at the earliest.

In other words - more uncertainty and delay. We've been let down again.

There are 160 trials currently underway - but it's depressing when one knocks out the combinations of existing treatments given what might have happened with Tysabri.

No apologise for the pessimistic rant, but I think we're entitled to it now and again.

Keep the faith - but it does get harder when it seems that for every one step forward we take two steps back.


Bromley

[OddDuck]

Hi, bromley!

Yes, I totally agree (re ranting and raving). As you know, I can be a real pro at that myself!

Right now, I don't know what to tell ya. That's why I was so frustrated a while back (when I vented on poor Wesley). (Sorry, Wesley.......it wasn't "you" I was upset with or about.) Oh, and I did have to go back and delete some things I said about "myself", because I divulged way too much information (that might not be too good for my "health and safety".

Anyway, maybe when we get a chance, we'll have to take another look to see if there is another positive way to look at all this. Right now it's hard, though. I'm totally with you there!

Deb