If it's on your mind and it has to do with multiple sclerosis in any way, post it here.


Postby Mike56 » Wed Jan 06, 2010 10:15 am

Another good site for support is MedHelp. It has an MS forum and if you are so far undiagnosed like me, there is a group called 'SURVIVING NEUROLOGICAL LIMBO LAND-NO DX'. Check it out. It's a great place to get answers and support from people in the same boat.

Hope to see you there, I'm Mike_Shuswap at MedHelp

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Re: Undiagnosed?

Postby jrd030 » Fri Feb 02, 2018 7:57 pm

UNDIAGNOSED??? If you are still undiagnosed and you know something is really wrong, you need to make sure and look into dysautonomia/postural orthostatic tachycardia syndrome (POTS). This basically means that your autonomic nervous system is not functioning properly. Ask your neurologist or cardiologist about a “tilt table test”. The reason why I am saying this is because I spent 4 months trying to figure out what was wrong with me. I saw 10 different doctors who ran a ton of tests and they all said everything was fine. Over those 4 months I experienced a long list of symptoms. These included severe shortness of breath (sometimes triggered by eating, but it wasn’t because it blocked my throat or anything), major tremors, major brain fog, declined mental acuity, dizziness, imbalance, diarrhea, constipation, severely clogged ears, insomnia, stiffness in my neck and back. However, POTS symptoms can differ greatly from person to person. Be sure to see a doctor who knows about this because part of the reason why local doctors couldn’t figure out what was wrong with me is because they didn’t/don’t know about dysautonomia/POTS. I had to end up going to the Mayo Clinic in another state to diagnose me. I say this because there will be others. I too was once reading forums such as this one I’m making now, desperately searching for answers.. A lot of people never go back and post what was wrong with them when they figure it out. I made a commitment to myself that I would, so that maybe I could help people who are in my past situation. God bless you all.
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