Greetings from Tokyo

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Greetings from Tokyo

Postby chalam » Thu Apr 21, 2005 3:34 am

My 15-year-old daughter was recently diagnosed with MS. This was understandably heartbreaking for our family. She has started on Betaferon at the suggestion of our neurologist.

Let me point out that a) we are American and don't speak Japanese b) Betaferon is the only disease modifying drug on the market in Japan c) Japan doesn't have much MS. For these reasons, I am especially grateful for the information I am finding on your site. I realize that it is pretty much up to me to stay on top of what is going on in the MS world.

We see the neurololgist later this week and I will try asking about LDN, antibiotic therapy and statins. I don't expect him to know much about any of these therapies, but you never know.

Is anyone out there the parent of an MS teen?
thanks
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chalam
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Postby bromley » Thu Apr 21, 2005 6:21 am

Chalam,

My heart goes out to your daughter and your family. If you go to forums there is a section for under 25s with MS. CCMom is a mother whose son was diagnosed in his early teens - I'm sure she would be happy to share her experience with you.

The US national MS site (NMSS) has a section on teens with MS and a magazine for teens.

Best wishes.

Bromley
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Postby Arron » Thu Apr 21, 2005 11:12 am

Hi and welcome!

As luck would have it, we recently added a section about parenting teens with MS:

http://www.thisisms.com/modules.php?nam ... forum&f=34

George Peabody is our volunteer moderator, and maintains a website specifically for this subgroup of MS'ers:

http://www.familieswithms.org/

I hope this is helpful, and we're very happy that you've found that our site has been a good resource for your difficult situation.
Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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