hello to all.....i found this site from one of your other members....daunted.
this is only the second ms board i have joined, and have found an awful lot of useful info here.
i am dx rrms one year this june. i suspect i have had ms since i was 30 when i had a demylinating event during the second trimester of my first pregnancy. not wanting to mess with the baby i just ignored it and things subsided until i had an attack last spring. (there were probably small things that in retrospect i ignored for 15 years)
i am on a benign course according to my neuro, and do feel fortunate that i have not had as many problems as so many others. yes i know how bad they can be..i grew up with a dad who has ms and was in a wheelchair by the time i was 11 or 12. he was dx before i was born in 1959, so things have come a long way since then.
i have multiple small foci on my brain and 3 lesions on my spine. i also have an abnormal vep for my right eye. (yippy...just what someone with an art background wants to hear)
i am a bad typer (never use the cap key..lol) and am not the brightest bulb on the block with all the medical jargon, but am trying to learn.
the reason i have registered here is so i can follow all the info on the folks trying antibiotics. i failed on copaxone (severe reaction..day 10 injection i passed out and my daughter found me crumpled up on the bathroom floor, plus i was losing motor co-ordination on my left side). i was then signed up for tysarbri, but it was pulled 2 weeks before my first infusion.
after having 2 teeth extracted i was given amoxicillin to prevent infection. i did great so only used 48 hours worth. after a very hectic schedule with my kids and moving i found my self getting a sinuse infection, so i finished the 10 days i had left.
it was a eureka moment. all the numbness left my hands and feet and has not returned for 1 month now. my fatigue is also not as bad as it was. i still have alot of fatigue, dizzyness/vertigo, jello legs, depression, etc...all stuff you guys have heard before. everyday is a new adventure.
so that is my very long story on why i am so interested in the vanderbilt protocol. i figure its worth a try as i am dead set against going on an interferon. call it gut instinct, or just that when my dads neuro put him on betaseron about 6 years ago i watched it knock one whole side of him out and we had to put him in a nursing home. its just burned into my memory circuits.
i appreciate all the information here....it's really helpful.